Replies – Forums – Katie Griffith – Page 2 – Friedreich's Ataxia News Forums

Katie Griffith

Member

October 5, 2022 at 9:26 pm in reply to: How do you manage scoliosis?

My son has scoliosis but never used a brace or had spinal surgery. He does have back pain from time to time and massages seem to give him some relief.

Katie Griffith

Member

September 29, 2022 at 8:02 pm in reply to: How do you manage when meeting new members of the FA Community?

It was a pleasure to meet you and so many others I had only met online!

Katie Griffith

Member

September 28, 2022 at 6:48 am in reply to: What approach do you take when thinking about the possible outcomes of the future?

I think setting reasonable goals is important for anyone and then having the courage to make a new goal and try again if the first is “unsuccessful”. We can only succeed if we try, and failing is often part of the learning process.

Katie Griffith

Member

September 19, 2022 at 8:58 pm in reply to: How many of you use more than one assistive device?

My son does based on the situation. On a regular day he uses a light-weight walker, but when we travel, he uses a more sturdy rollator. If we go to a ball game or other day trip with a long distance walk, we will take his manual wheelchair.

Katie Griffith

Member

September 19, 2022 at 8:53 pm in reply to: Making Plans for the Fall

He has moved in and there were definitely accessibility issues that we didn’t foresee! He has been in contact with the office of accessibility at the college, but it is so frustrating that he has to use his already limited energy to get to his dorm room 🙁

Katie Griffith

Member

September 16, 2022 at 9:04 pm in reply to: What approach do you take when thinking about the possible outcomes of the future?

One day at a time!

Katie Griffith

Member

September 8, 2022 at 9:02 pm in reply to: How well prepared can you be for the unexpected?

The only way I’m able to do this with a son with FA and someone who recently lost a spouse is living moment by moment. When I start worrying about the what-ifs and thinking too far into the future, I get overwhelmed.

Katie Griffith

Member

August 30, 2022 at 10:31 pm in reply to: Have you ever had to explain disabilities to children?

What an insightful post! I do think exposure and inclusion are huge!! My youngest son is much more compassionate and aware of others because he is around his older brother with FA.