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    • #18812
      Katie Griffith
      Keymaster

      Finding the right doctor can be a daunting task. When you throw a neuromuscular disease like Friedreich’s ataxia in the mix, it becomes even more challenging. 

      There are many different reasons for having to find a new doctor — relocating, aging out, being unhappy. My son turned 21 this year, and we are having to find a new cardiologist since he can no longer be seen by the pediatric one.

      How do you go about finding a new doctor for your loved one? What factors affect your decision?

    • #18818
      Christina Roberts
      Participant

      We are having many issues finding a good one too but we’re we are in Indiana not many at all that knows about Friedreich’s ataxia and the good ones that we found are like couple states away like in new York or Florida mayo clinic been very hard for us nobody knows anything

      • #18821
        Katie Griffith
        Keymaster

        That’s so hard, Christina! Good luck ❤️

    • #18822

      Luckily I go to the Children’s Hospital of Philadelphia (CHOP) and their sister Hospital University of Pennsylvania (UPENN) is within the same network. They were able to reccomend an adult cardiologist that is even familiar with FA. Can Noah be referred by his current cardiologist?

      • #18824
        Katie Griffith
        Keymaster

        Unfortunately, he didn’t have anyone to recommend :/ We have an appointment with someone in the area in September. Hope it will be a good fit!

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