Christina Cordaro

Does anyone else have difficulty controlling your voice volume? I find myself having this issue alot lately. J tend to talk over people or interrupt them when they are talking when I don’t mean to.

Do you know of any tips to prevent this?

The deadline to sign this letter was this past Wednesday, January 20th. Over the past two weeks, people living with FA, their family members, their friends, their healthcare providers, and their advocacy organizations came together and produced 73,000+ signatures!

In the next few weeks, the FARA (Friedreich’s Ataxia Research Alliance) team will…[Read more]

Is anyone here affected by hearing loss due to living with Friedreich’s Ataxia?Do any of you wear hearing aids and if so, what kind do you have? Do they help positively or negatively?

With FA, it’s hard to tell if it will be a good day or bad day. When I am having a bad day relating to FA, I tend to have random emotional outbursts that leads me into having a breaking down. This usually happens when I am overworked or fatigued.

Does this happen to anyone else and how do you cope with it?

This is my favorite Martin Luther King quote that reminds me of what it is like to live with FA. Each day I like to celebrate my small victories and what I accomplish.

What’s you favorite MLK quote and why?

Who here on the forums has used or uses walking stick? I hear it has more stability than a camera and it truly helps with balance when walking since it is as tall as you.

Does anyone have any good recommendations for brands or styles?

Thank you to everyone who signed, wrote a statement, and shared this effort. There has been 38,000 signatures and we are in our last week (deadline is January 20th)!

Click here to read and sign the letter: http://www.curefa.org/advocacy

*This letter requests Reata to submit a New Drug Application (NDA) on an urgent basis and FDA to exercise the…[Read more]

Lately, I have been noticing my hearing is becoming more affected due to FA. I am having trouble listen accurately, keeping my focus, and difficult with speech (whether it is getting my own words out or understanding other people’s words). It is extremely frustrating because I try my best to pay attention and use my energy to do so.

Does anyone…[Read more]

For wheelchair users, do you prefer to use a manual wheelchair or an electric wheelchair? Do you use one over the other for certain benefits?

For me, I divide my time eith using a walker and wheelchair because of my fatigue. I prefer a manual wheelchair because I don’t use it regularly so it’s easier for someone to push me and because I can’t…[Read more]

When it’s winter season, my feet always turn purple due to being numb and having no circulation running through them. I recently started to notice the same thing about my ankles. They get swollen too.

Does anyone else experience this and what remedies do you take to prevent this?

I recently started taking these CBD Gummies to help me sleep better and consistently throughout the night. They consist of CBD, CBN and valerian root (all benefits to help this process). I definitely see a difference in taking these vs. taking regular CBD gummies.

Do you take CBD gummies or have other remedies to help you sleep throughout the night?

This letter provided by FARA (Friedreich’s Ataxia Research Alliance) is addressed to FDA & Reata Pharmaceuticals to allow individuals with Friedreich’s Ataxia access to Omaveloxolone, a new clinically proven drug that slows down the progression of FA.

This letter requests Reata to submit a New Drug Application (NDA) on an urgent basis and FDA to…[Read more]

This is the FA Community’s call to action to request access to Reata and the FDA!

Tomorrow, January 5, 2021 at 7pm (EST), a webinar outlining FARA’s proposed response from the FA community to the positive results of Reata Pharmaceuticals’ MOXIe Part 2 clinical study.

Click below to learn more and reg…[Read more]

How was everyone’s holiday season? Did you do anything exciting that you would like to share?

Did you set any New Years goals for yourself? One of mine is to get more sleep each night because rest is very important when living with FA and it will help me get through my days better.