@christina-logan
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Christina Cordaro started the topic Accessible Kitchen Trends in the forum Living with FA 3 days, 10 hours ago
A kitchen in a home is the most used space. It’s where you and your loved ones gather 2-3 times a day to reflect on each other’s days over a course of a meal. So why not make it safe and practical for all to use?
Here is an article that discusses 5 accessible kitchen designs that you can benefit from based on your needs.
Do you design your…[Read more]
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Christina Cordaro replied to the topic Motivational Monday – Martin Luther King Jr. in the forum Living with FA 3 days, 10 hours ago
That’s one of my favorites too!
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Christina Cordaro started the topic Motivational Monday – Martin Luther King Jr. in the forum Living with FA 5 days, 6 hours ago
This has always been my favorite Martin Luther King Jr. quote. His words inspire me and give me the strength to push through when I am faced to overcome obstacles relating to Friedreich’s Ataxia.
What is your favorite MLK quote to live by?
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Christina Cordaro replied to the topic RideATAXIA Gainesville in the forum Parents & Caregivers of Those with FA 1 week, 3 days ago
My family and I always attend the rideATAXIA Philly event! A fundraising idea we like to do is a give back night to a local restaurant where proceeds of everyone’s bills benefit FARA (Friedreich’s Ataxia Research Alliance) and the restaurant! This way, both parties make out by supporting a great cause and a local business!
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Christina Cordaro posted a new activity comment 1 week, 5 days ago
Hi Sandor,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of ou…[Read more] -
Christina Cordaro started the topic Importance of Research in the forum FA Research, Scientific News, & Clinical Trials 1 week, 5 days ago
It’s a new year of groundbreaking research for the FA Community! Here are key highlights on Friedreich’s Ataxia Research Alliance (FARA) Research Pipeline:-The GeneTAC clinical trial to start in the first half of this year
-AavantiBio’s gene therapy trial to start by the end of the year -Reata’s
-Omaveloxolone will be going up for FDA a…[Read more] -
Christina Cordaro started the topic Hi 2022! in the forum About Our Forum 2 weeks, 3 days ago
With the new year here, what topics would you recommend to be covered on this forum?
What is an FA experience(s) you would like to discuss and learn from by connecting with others?
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Christina Cordaro replied to the topic Insurance in the forum Assistive Device Usage 2 weeks, 3 days ago
I’ve never heard of a wheelchair clinic either, but that’s resourceful information if my diagnosis gets to the point of me using a wheelchair (I primarily use a rollator and use a scooter on occasion). Thank you!
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Christina Cordaro replied to the topic A New Year’s Check In in the forum Parents & Caregivers of Those with FA 2 weeks, 3 days ago
I’m glad things are going upward and everyone is feeling better!
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Christina Cordaro started the topic Fitness Goals in the forum Nutrition, Supplements, and Exercise 2 weeks, 5 days ago
Happy Monday and Happy New Year! I hope everyone enjoyed your time with friends and family this holiday season.
A common new year’s resolution is to adapt a healthy lifestyle and to gain physical strength. My goals for this year include eating more healthy and to ride my recumbent Catrike more when the weather is nice.
Does anyone here…[Read more]
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Christina Cordaro posted a new activity comment 3 weeks, 1 day ago
Hi Kevin,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of our c…[Read more] -
Christina Cordaro started the topic Happy New Year! in the forum About Our Forum 3 weeks, 1 day ago
To send off 2021, we are lighting up some sparklers to celebrate each one of you! You make this patient community so special. We’d also like to raise a glass to the phenomenal caregivers, friends, partners, and relatives who are also part of this amazing community! Happy New Year to all of you!
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Christina Cordaro replied to the topic Looking Back over 2021 in the forum Parents & Caregivers of Those with FA 3 weeks, 1 day ago
These are all great events to look back on! I am thankful as well to be working with you as a co-moderator for Friedreich’s Ataxia News!
Things that stand out to me is still working full-time and all the improvements my husband and I made to our house after only moving in a year ago.
Happy New Year!
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Christina Cordaro started the topic Holiday Season in the forum About Our Forum 1 month ago
Good Morning All! The forum moderators will be off the following days:
Friday: 12/24
Monday: 12/27
Friday: 12/31It may take longer to respond to any comments, but we will be checking in here and there.
Happy Holidays and have a safe holiday with your loved ones!
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Christina Cordaro started the topic Holiday Break b in the forum About Our Forum 1 month ago
Good Morning All! The forum moderators will be off starting tomorrow? 12/24 to 1/3 for holiday break, so it may take longer to respond to any comments, but we will be checking in here and there.
Happy Holidays and have a safe holiday with your loved ones!
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Christina Cordaro replied to the topic 2 in 1 Rollator and Wheelchair in the forum Assistive Device Usage 1 month ago
I don’t have this. However, I recntly got a scooter but was not able to get insurance help cover it 😔
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Christina Cordaro started the topic 2 in 1 Rollator and Wheelchair in the forum Assistive Device Usage 1 month ago
The Rollz Motion is a rollator and wheelchair in one. It can easily be transformed from a rollator into a wheelchair (and vice versa). With this device, you won’t have to worry about energy when going out since you will have both options readily available.
To learn more about the product, click here.
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Christina Cordaro posted a new activity comment 1 month ago
Hi CG,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of our c…[Read more] -
Christina Cordaro started the topic Motivational Monday – Reading in the forum Living with FA 1 month ago
Friedreich’s Ataxia patient, Jacob Thompson wrote a book, From Diagnosis to Destiny to encourage people, especially living with FA or a caretaker of someone with FA.
What kind of inspiration do you look for?
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Christina Cordaro started the topic Beds in the forum Assistive Device Usage 1 month, 1 week ago
What type of bed do you use, a standard bed or a hospital bed? Also, what makes it easier to transfer in and out of? For example, do you use bed rails or a step stool with handrails?
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