Christina Cordaro

On any ordinary day, it is important that FA patients find shoes to wear that are comfortable and have support. This is especially crucial when it comes to walking on beach. You want to feel confident with the stability in your balance and walking.

I have found that water shoes are the best fit for me to wear on the beacj. They are easy to…[Read more]

I am on summer vacation down the shore with my family on our annual summer vacation. This is my second time using a wheelchair on the beach and it is the best thing. I don’t have to worry about walking on the uneven sand and it’s easy to go into the ocean water.

Have you ever used a beach wheelchair? Did you have a positive or negative experience?

This fall the research alliance group, FARA is combining the Philly and Dallas rideATAXIA events and creating the rideATAXIA Global Challenge.

Another virtual challenge will start on International Ataxia Awareness Day, September 25th, and will end on October 24th. This will be an effective way to raise awareness and funds for FA research during…[Read more]

As a parent or spouse of a loved one living with FA or being a caregiver, what is the hardest thing to see and overcome?I know for husband, it is difficult for him to see my progression slowly getting worse, whether it is my difficulty with walking or falling more easily.

What is some words of advice you can provide to other caretakers?

NORD, the National Organization for Rare Diseases is encouraging patients to get involved and take a stand!

Now, more than ever, rare disease patients need access to safe and affordable health care for both routine and COVID-19 related treatments. Act today to tell your Member of Congress to include policies that support rare disease patients in…[Read more]

With the pamdemic, some of us have more time to catch up on a favorite novel or discover a new one. It’s a great way to relax and unwind and to make the time pass.

When enjoying a book do you prefer actual reading or playing an audio book? Is one method better than the other for you to lessen fatigue?

I use a rollator for my main mode of transportation, but I have noticed that walking is becoming more difficult for me. My stability is getting worse and I tend to lose my balance and fall more.

Has anyone else experienced this? Do you think this is a sign to switch to a wheelchair full-time?

My brother and myself are both confirmed being diagnosed with Friedreich’s Ataxia. I am thankful that my brother is not showing symptoms yet. He is 18 years old and about to go to college. My older sister who is 34 years old is about to get married and already thinking of her future and having children with FA in mind. She decided to get genetic…[Read more]

Are there any parents here with FA or that have children living with FA year has made the decision to homeschool because of COVID? A mother with FA I know decided to homeschool her two boys for this upcoming school year. She stated it is a lot of dedication and time wirh virtual meetings, training, etc.

Are you thinking about doing the same? Do…[Read more]