@christina-logan
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Christina Cordaro started the topic COVID Variant in the forum Coronavirus (COVID-19) and FA 4 days, 4 hours ago
Is anybody here worried about the new COVID strand with the recrnt news of cases rising again?
If you have had the vaccine, would you be interested in or recommend getting the “booster” if it becomes available or not?
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Christina Cordaro replied to the topic Better Together in the forum Parents & Caregivers of Those with FA 4 days, 4 hours ago
Witn COVID taking place and not being able to attend events in person, social media has been a key role player. People having social media to keep in touch with one another has been a great tool to stay connected to the FA Community!
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Christina Cordaro replied to the topic Speech in the forum Living with FA 4 days, 4 hours ago
I am praying it goes well too!
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Christina Cordaro started the topic Motivational Monday – Bravery in the forum Living with FA 5 days, 19 hours ago
Bravery comes from a combination of personal characteristics, training, friends, and knowledge.
What is something that you or a loved one achieved with bravery?
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Christina Cordaro posted a new activity comment 1 week, 1 day ago
Hi Crissy,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of ou…[Read more] -
Christina Cordaro replied to the topic Fundraising Ideas in the forum Parents & Caregivers of Those with FA 1 week, 1 day ago
Every year, my family patricipate in rideATAXIA Philly. I usually ride the 8 mile route on my trike! We have been attending the last 9 years.
In addition, we used to host a local grassroots 5K event every Mother’s Day. It was a great day the local community would always look forward to for raising awareness and coming together on the holiday. We…[Read more]
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Christina Cordaro started the topic Living Situations in the forum Living with FA 1 week, 1 day ago
Does anyone here live independently? If so, what is something you take pride in?
Before I got married, I lived independently and always felt accomplished cooking on my own and making my own meals.
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Christina Cordaro started the topic Motivational Monday – Strength in the forum Living with FA 1 week, 5 days ago
“Strength doesn’t come from what we can do. It comes from overcoming the things you once thought you couldn’t”.
What is one achievement you accomplished, big or small?!
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Christina Cordaro started the topic Miami Swim Week Showcases Inclusion in the forum Additional Resources 2 weeks, 2 days ago
During Disability Pride Month, this is great to see inclusion being represented! As stated in the article, “Inclusion campaigns are step one to normalization and very pleased with being a part of that barrier break.”.
https://digitpatrox.com/miami-swim-week-makes-history-with-inclusive-diverse-runways/
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Christina Cordaro replied to the topic Motivational Monday – Rest in the forum Living with FA 2 weeks, 2 days ago
Nighttime is my downtime too. Love to watch shows with my husband on TV. We like to watch anything on Food Network or Travel Channel.
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Christina Cordaro replied to the topic Motivational Monday – Rest in the forum Living with FA 2 weeks, 2 days ago
That sounds so relaxing!
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Christina Cordaro replied to the topic Disability Parking Placard in the forum Additional Resources 2 weeks, 2 days ago
Great idea! I should look into doing that.
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Christina Cordaro replied to the topic Disability Parking Placard in the forum Additional Resources 2 weeks, 4 days ago
That’s great you were able to get two! I wish Pennsylvania had the same law!
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Christina Cordaro started the topic Disability Parking Placard in the forum Additional Resources 2 weeks, 4 days ago
Parking privileges are available for those with living with disabilities. They are eligible for a Persons with Disability Registration Plate or a permanent Persons with Disability Parking Placard. You can apply for either with your state’s driver and vehicle services.
Applying for the placard is one of the best accommodations I ever applied for!…[Read more]
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Christina Cordaro replied to the topic Motivational Monday – Rest in the forum Living with FA 2 weeks, 4 days ago
That still is fun and interactive!
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Christina Cordaro replied to the topic Motivational Monday – Rest in the forum Living with FA 2 weeks, 4 days ago
That still is fun and interactive!
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Christina Cordaro started the topic Motivational Monday – Rest in the forum Living with FA 2 weeks, 6 days ago
When you are resting while you are worn out, you need to remember that you are not wasting the day doing nothing. You are doing exactly what you need to do. You are recovering .
What is your favorite thing to do while letting your body recuperate?
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Christina Cordaro replied to the topic Clinical Trial Participation in the forum Parents & Caregivers of Those with FA 3 weeks, 3 days ago
@katie-griffith my brother wno js 20 is currently participating in the Natural History Study at the Children’s Hospital of Philadelphia (CHOP).
He enjoys visiting every 6 months because he likes comparing and trys to beat his score on the neurological tests! He likes to compete with himself! Lol
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Christina Cordaro started the topic Wheelchair Users in the forum Nutrition, Supplements, and Exercise 3 weeks, 3 days ago
Is there anyone here who uses a wheechair that has any advice or tips for losing weight? Do you find working cardio or following a nutritional diet works best for you?
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Christina Cordaro replied to the topic Is Travel a Pleasure or a Pain? in the forum Parents & Caregivers of Those with FA 1 month ago
@Katie-griffith thank you for sharing this blog! Very informative and it’s giving me great tips for my next trip!
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