@henry-sykes
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Henry started the topic Accidents during the night in the forum Living with FA 1 year, 4 months ago
Most recently I’ve started having small accidents during my sleep, do you have this? What can I do to control my bladder?
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Henry posted an update 2 years ago
What vitamins or medications do you take? And why?
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Henry replied to the topic Thoughts Regarding States Reopening in the forum Coronavirus (COVID-19) and FA 2 years, 1 month ago
I think we’re all just gonna have to live with it tbh it’s not just going to go away! We still live with other viruses/diseases and especially flu which takes thousands of lives every year! No ones scared of either of these things! I think one thing that I’ve got out of this whole epidemic is to be more vigilant on where I go and who I mix with,…[Read more]
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Henry and
Christina Cordaro are now friends 2 years, 4 months ago -
Henry posted an update 2 years, 4 months ago
Does anyone suffer with problems with their bladders? If so what are your symptoms? How do you help this?
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I do. I get sudden urges and pack control that sometimes makes me have accidents.
I try to limit how much water and coffee I drink when I am at work or out in public to avoid having these accidents when I’m not home.
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Henry replied to the topic Medical Marijuana (Tuesday)- Topic: Edibles in the forum Living with FA 2 years, 4 months ago
@christina-logan are these with THC as I live in the UK so the zones with THC aren’t legal here
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Henry's profile was updated 2 years, 4 months ago
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Henry posted a new activity comment 2 years, 4 months ago
Thanks Frankie!
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Henry posted a new activity comment 2 years, 4 months ago
This is brilliant thanks Christina! Found this by seeing one of your posts on the Facebook group!
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Henry became a registered member 2 years, 5 months ago
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Hi Henry,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part…-
This is brilliant thanks Christina! Found this by seeing one of your posts on the Facebook group!
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Hey Henry! Thank you for signing up and welcome to the FA Forum!
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Thanks Frankie!
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Henry's profile was updated 2 years, 5 months ago
Hi Henry!
During the day, I take B12 for energy, Vitamin E for my heart and Idebonone to control future heart damage. I also take Gabapentin and Baclofen at night to help me sleep and reduce my pain and numbness.