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Henry

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@henry-sykes

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    Henry started the topic Accidents during the night in the forum Living with FA 2 weeks, 2 days ago

    Most recently I’ve started having small accidents during my sleep, do you have this? What can I do to control my bladder?

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    Henry posted an update 9 months ago

    What vitamins or medications do you take? And why?

    • Profile picture of Christina Cordaro
      Christina Cordaro replied 9 months ago

      Hi Henry!

      During the day, I take B12 for energy, Vitamin E for my heart and Idebonone to control future heart damage. I also take Gabapentin and Baclofen at night to help me sleep and reduce my pain and numbness.

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    Henry replied to the topic Thoughts Regarding States Reopening in the forum Coronavirus (COVID-19) and FA 9 months, 1 week ago

    I think we’re all just gonna have to live with it tbh it’s not just going to go away! We still live with other viruses/diseases and especially flu which takes thousands of lives every year! No ones scared of either of these things! I think one thing that I’ve got out of this whole epidemic is to be more vigilant on where I go and who I mix with,…[Read more]

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    Henry and Profile picture of Christina CordaroChristina Cordaro are now friends 1 year ago

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    Henry posted an update 1 year ago

    Does anyone suffer with problems with their bladders? If so what are your symptoms? How do you help this?

    • Profile picture of Christina Cordaro
      Christina Cordaro replied 1 year ago
      I do. I get sudden urges and pack control that sometimes makes me have accidents.

      I try to limit how much water and coffee I drink when I am at work or out in public to avoid having these accidents when I’m not home.

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      Henry replied to the topic Medical Marijuana (Tuesday)- Topic: Edibles in the forum Living with FA 1 year ago

      @christina-logan are these with THC as I live in the UK so the zones with THC aren’t legal here

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      Henry's profile was updated 1 year ago

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      Henry posted a new activity comment 1 year ago

      Thanks Frankie!

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        Henry posted a new activity comment 1 year ago

        This is brilliant thanks Christina! Found this by seeing one of your posts on the Facebook group!

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          Henry became a registered member 1 year, 1 month ago

          • Profile picture of Christina Cordaro
            Christina Cordaro replied 1 year, 1 month ago
            Hi Henry,
            Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part…

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              Henry replied 1 year ago
              This is brilliant thanks Christina! Found this by seeing one of your posts on the Facebook group!
            • Profile picture of Frankie Perazzola
              Frankie Perazzola replied 1 year, 1 month ago

              Hey Henry! Thank you for signing up and welcome to the FA Forum!

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                Henry replied 1 year ago
                Thanks Frankie!
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              Henry's profile was updated 1 year, 1 month ago

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