How I Eliminated Fatigue, Part 1: A Bed Fit for a Queen
First in a series. Recently, I implemented two major life changes for the elimination of my fatigue associated with Friedreich’s ataxia. Over the next ... Read more
Updates
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How Friedreich’s Ataxia Redefined My Faith
I grew up in a church-going family that was always involved in ministry. We spent at least three days a week at church. I ... Read more -
Depression and Its Symptoms Can Be Severe in Friedreich’s Ataxia Patients, Study Says
Depression can be severe and clinically relevant among patients with Friedreich’s ataxia, and its symptoms are most often expressed as a lack of motivation and negative ... Read more -
Introversion as an Excuse
Sometimes I use my introversion as an excuse. It’s safe and secure; it’s familiar not to expose myself to unfamiliar situations. I find safety and ... Read more -
I Apologize for Going Dark
Do you ever experience times when being social in any form is out of the question? When engaging in online or in-person conversation is ... Read more
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General Admission Tickets Can Be a Gamble for People with FA
Thanks to Friedreich’s ataxia, I’m never more anxious than in an open crowd in ... -
A Physical Therapist Shares Her Perspective on Working with FA Patients
I have been working with my physical therapist, Kelli, for a year and a ... -
Inhibition of FAST-1 Molecule May Have Therapeutic Potential in Friedreich’s Ataxia, Study Confirms
A naturally produced RNA molecule called FAST-1 can prevent the readout of the FXN gene ... -
Finding Reasons to Stay Alive
Drowsily and with great effort, I hoisted the top half of my body upright ... -
3 Blood Biomarkers May Be Used to Monitor Friedreich’s Ataxia Status, Study Suggests
High blood levels of three specific proteins may represent new biomarkers to monitor active ...
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Urinary, Bowel, Sexual Symptoms in FA Lead to Lower Quality of Life, Study Reports
News
Many Friedreich’s ataxia patients experience urinary tract symptoms, bowel problems, and sexual dysfunction, which leads to a lower quality of life, research shows. The study, “Urinary, bowel and sexual symptoms in a cohort of patients with Friedreich’s ataxia,” was ... Read more