Updates

October 18, 2019November 13, 2019
‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview

MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the first approved targeted treatment for Friedreich’s ataxia (FA), succeeded ... Read more
November 15, 2019November 13, 2019
Podcast Sponsored by Reata Pharmaceuticals Focuses on Community Engagement

Members of the Friedreich’s ataxia (FA) community are waking up each morning with extra grateful and hopeful hearts, thanks to the recent news of ... Read more
November 14, 2019
Rare Disease Film Festival Highlights Patient and Researcher Unity

Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 ... Read more
November 14, 2019November 14, 2019
Leriglitazone Earns European Commission’s Orphan Drug Designation for FA

Minoryx Therapeutics’ lead investigational therapy leriglitazone (MIN-102) has been granted orphan drug designation by the European Commission for treating patients with Friedreich’s ataxia (FA). The European Commission’s decision ... Read more
November 13, 2019November 13, 2019
I’m Not Finished with Life Yet

When I was 16, I searched the internet for Friedreich’s ataxia (FA) for the first time. I couldn’t ignore its effects any longer, and ... Read more
November 12, 2019November 8, 2019
I Can’t Let Fear Dictate My Next Steps

There is a first time for everything, right? That’s a phrase I often hear and it is true. A baby’s first words, a teenager’s ... Read more

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News

‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns

Rediscovering My Passion for Baking
November 8, 2019November 6, 2019
I recently rediscovered my passion for baking. My hopes and dreams should not be ...
News

Scoliosis Common in FA Children, Spinal Exams Should Be Part of Routine Patient Care, Study Argues
November 7, 2019November 7, 2019
Scoliosis, an abnormal curvature of the spine, is highly prevalent in children with Friedreich’s ...
Columns, Little Victories - a Column by Matthew Lafleur

A Perfect Picture: FA Symposium 2019
November 6, 2019November 4, 2019
Is this even worth it? The noisy confusion was almost comical. Luckily, I was ...
Columns, No Good Excuse - a Column by Sean Baumstark

Stubbornness Is Dangerously Close to Determination
November 5, 2019November 1, 2019
The difference between determination and stubbornness is becoming more and more clear. With the ...
Columns, Fighting FA - a Column by Frankie Perazzola

Would I Recommend Traveling to Italy with FA?
November 4, 2019October 31, 2019
My family and I recently took an incredible vacation to our motherland, Italy. We ...

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‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
Reactivating Nrf2 Pathway Restores Nerve Cell Development in FA, Mouse Study Suggests
October 31, 2019October 31, 2019
Reactivativation of the Nrf2 pathway, which is impaired in the nerve cells — or ...
My Little Victories Are Enough for Me
October 30, 2019October 25, 2019
Keeping the Endgame in Mind During Physical Therapy
October 29, 2019October 25, 2019
Do You Put Off Doctors’ Appointments Due to Anxiety?
October 28, 2019October 24, 2019
Stay Involved in the FA Community Even When You Can’t Attend an Event
October 25, 2019October 23, 2019

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0 out of 5 stars. 0 votes.

‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
Phantoms and Flowers: Hades, Persephone, and Hope
October 23, 2019October 21, 2019
A Fractured Hip Has Slowed Me Down but I Can Still See the Silver Lining
October 22, 2019October 18, 2019
MOXIe Took Steps to Ensure ‘Reliability’ of Trial Results, Reata Executives Say in Interview
October 21, 2019October 21, 2019

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0 out of 5 stars. 0 votes.

‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
The View from My Standing Frame
October 16, 2019October 14, 2019
The People We Surround Ourselves With Matter
October 15, 2019November 13, 2019

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News

‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
News

MOXIe Trial of Omaveloxolone Shows Significant Benefit to FA Patients, Reata Reports
October 15, 2019October 31, 2019
Topline results of Reata‘s MOXIe trial show that almost one year of treatment with ...
A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns

How I Realized I Was Ready to Transition to the Next Assistive Device
October 11, 2019October 9, 2019
I often revisit a memory from eight years ago when my family and I ...
News

Phase 2 Trial of Leriglitazone Ready to Dose Patients After Completing Enrollment Ahead of Schedule
October 10, 2019October 10, 2019
A Phase 2 trial testing leriglitazone as a potential oral treatment for Friedreich’s ataxia ...
Columns, Little Victories - a Column by Matthew Lafleur

The Best Man Gets His Groove On
October 9, 2019October 4, 2019
Being the best man at a wedding had its challenges. I am not comfortable ...
Columns, No Good Excuse - a Column by Sean Baumstark

Focus on Results, Not on Excuses
October 8, 2019October 4, 2019
Once again, this weekly writing exercise is proving to be more beneficial than I ...
A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns

3 Reminders for Living with an Invisible Disease
October 4, 2019October 1, 2019
Living with an invisible disability is not easy. Symptoms that cannot be seen are ...
News

Depression Significantly Affects Quality Of Life for FA Patients and Requires Intervention, Study Finds
October 4, 2019October 4, 2019
Symptoms of depression significantly affect the quality of life of people with Friedreich’s ataxia ...
Columns, Little Victories - a Column by Matthew Lafleur

The Zeego Tales: Takeoffs Are Scary!
October 2, 2019October 23, 2019
“The Zeego Tales” track the wonders of my new life with my service dog, ...

October 5, 2017February 20, 2019

Urinary, Bowel, Sexual Symptoms in FA Lead to Lower Quality of Life, Study Reports

News

Many Friedreich’s ataxia patients experience urinary tract symptoms, bowel problems, and sexual dysfunction, which leads to a lower quality of life, research shows. The study, “Urinary, bowel and sexual symptoms in a cohort of patients with Friedreich’s ataxia,” was ... Read more

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