FA Events Give Us a Sense of Community and Belonging
October is my favorite month. I love the feeling of new beginnings that comes with the crisp fall air. And I’m excited about two ... Read more
Updates
-
-
‘Lot of Groundwork’ Behind MOXIE Trial’s Strong Results, Reata Executives Say in Interview
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the first approved targeted treatment for Friedreich’s ataxia (FA), succeeded ... Read more -
The View from My Standing Frame
As I type this column, I’m standing about 5 feet, 11 inches tall. Honestly, that’s a couple inches taller than my natural height. The ... Read more -
The People We Surround Ourselves With Matter
As I write this, I want nothing more than to go home and crawl into bed. Today has been longer and more exhausting than ... Read more -
MOXIe Trial of Omaveloxolone Shows Significant Benefit to FA Patients, Reata Reports
Topline results of Reata‘s MOXIe trial show that almost one year of treatment with the investigational oral therapy omaveloxolone (RTA 408) is well-tolerated and ... Read more
-
How I Realized I Was Ready to Transition to the Next Assistive Device
I often revisit a memory from eight years ago when my family and I ... -
Phase 2 Trial of Leriglitazone Ready to Dose Patients After Completing Enrollment Ahead of Schedule
A Phase 2 trial testing leriglitazone as a potential oral treatment for Friedreich’s ataxia ... -
The Best Man Gets His Groove On
Being the best man at a wedding had its challenges. I am not comfortable ... -
Focus on Results, Not on Excuses
Once again, this weekly writing exercise is proving to be more beneficial than I ... -
3 Reminders for Living with an Invisible Disease
Living with an invisible disability is not easy. Symptoms that cannot be seen are ... -
Depression Significantly Affects Quality Of Life for FA Patients and Requires Intervention, Study Finds
Symptoms of depression significantly affect the quality of life of people with Friedreich’s ataxia ...
Subscribe to our mailing list
Get regular updates delivered to your email box.
Thanks! Please check your email for a confirmation email.
Urinary, Bowel, Sexual Symptoms in FA Lead to Lower Quality of Life, Study Reports
News
Many Friedreich’s ataxia patients experience urinary tract symptoms, bowel problems, and sexual dysfunction, which leads to a lower quality of life, research shows. The study, “Urinary, bowel and sexual symptoms in a cohort of patients with Friedreich’s ataxia,” was ... Read more