My Journey to a Friedreich’s Ataxia Diagnosis, Part 3
Third and final in a series. In a previous column, I discussed the tests I underwent to diagnose Friedreich’s ataxia. “Kendall, I was afraid ... Read more
Updates
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FA Patients’ Lack of Skin Nerve Fibers Made Worse by Larger FXN Defects, Study Reports
People with Friedreich’s ataxia (FRDA) have fewer small nerve fibers in their skin compared with healthy subjects, and the greater a patient’s defects ... Read more -
Where the Heck Is Matt?
It doesn’t make sense, and I’ve given up trying to figure it out. It’s a silly video sponsored by a chewing gum company that paid ... Read more -
Find a Workplace that Treats Your Disabilities with Dignity
In my hotel hospitality job, I can count on working long hours, multiple days in a row, and on holidays and weekends. I knew ... Read more -
My Journey to a Friedreich’s Ataxia Diagnosis, Part 2
Second in a series. In a previous column, I discussed my active childhood and early signs that something wasn’t right. As the evidence began ... Read more
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Vacation Endings and Beginnings
Last in a series of reflections on a recent vacation to Turks and Caicos. Read ... -
Iron Chelators May Aid the Heart But Don’t Seem to Help Neurological Problems, Study Shows
Iron chelation therapy using deferiprone, while helping heart function, does not seem to improve ... -
10 Lessons I’ve Learned from Having FA
It’s funny how cliches about life have started to make sense to me. From ... -
Don’t Let Fear of Missing Out Spoil Your Trip
My husband Justin and I returned last week from our honeymoon in the Bahamas ... -
My Journey to a Friedreich’s Ataxia Diagnosis, Part 1
First in a series. From the time we are toddlers, we start dreaming about ... -
Vibration Device Fails to Halt Motor Deterioration in Children with Friedreich’s Ataxia, Small Study Shows
Muscle stimulation through focal vibrations produced by a specialized device may prevent further deterioration ...
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Urinary, Bowel, Sexual Symptoms in FA Lead to Lower Quality of Life, Study Reports
News
Many Friedreich’s ataxia patients experience urinary tract symptoms, bowel problems, and sexual dysfunction, which leads to a lower quality of life, research shows. The study, “Urinary, bowel and sexual symptoms in a cohort of patients with Friedreich’s ataxia,” was ... Read more