I’ve been reading Wally Lamb’s latest novel, “The River Is Waiting,” and somewhere along the way I realized that this isn’t just another book I’m enjoying. It’s a reminder of why I keep coming back to Lamb’s work. That realization sent me back to the first time I picked up…
Discussion
International Ataxia Awareness Day on Sept. 25 aims to bring people together worldwide to raise awareness of ataxia — a group of diseases that includes Friedreich’s ataxia (FA) — and the National Ataxia Foundation (NAF) is urging everyone to take part through advocacy, social media, virtual and in-person…
Discussion
About a week ago, I sat in my husband Dave’s car with butterflies in my stomach. My new service dog, Fresco, sat calmly in the back seat. Fresco and I were about to take the public access test for service dogs. I didn’t want to do it. After only…
Discussion
One good thing that came out of fracturing my leg this summer is that I’ve resumed physical therapy. I went to physical therapy once or twice a week from 2017 to 2023. We would work on everything. If I had an injury or problematic pain, we would work on…
Discussion
Replacing myeloid cells — a group of immune cells that includes microglia in the brain and spinal cord and macrophages in other tissues — with healthy, donor-derived cells improved neurological and heart abnormalities in a mouse model of Friedreich’s ataxia (FA), a U.S. study found. Microglia and macrophages can become…
Discussion
Failure in a protein modification process needed to maintain the function of a brain receptor is a key early mechanism leading to Friedreich’s ataxia, a mouse study showed. The process, known as palmitoylation, links the loss of frataxin, the protein missing in people with FA, to nerve cell vulnerability…
Discussion
Discussion
Discussion
Discussion
Discussion
Discussion
Becoming educated and informed about FA is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your FA journey.
There is no cure for FA yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
Get regular updates to your inbox.
