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Sean lives with Friedreich’s ataxia and embodies the mantra “get stuff done.” He believes excuses hold us back from being our best. He is the founder of de:terminence, a nonprofit helping disabled individuals experience the beauty and power of physical achievement. He also co-hosts a weekly podcast, “Two Disabled Dudes,” which encourages listeners to “live beyond circumstances.” He lives and works in Sacramento, California.
I can’t exactly put my finger on why, but for a long time, I thought success had to do with how many friends I had. How many of them called me by name and went out of their way…
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The progressive nature of Friedreich’s ataxia (FA) has been a common topic for me lately. From talking with a friend over dinner about changes I experience to discussing on my podcast the many ways in…
I met a friend for dinner recently, and we talked about the changes I’ve observed in my capabilities in the last several months. Not only did we have a pleasant conversation, but in celebration of Cinco de Mayo, we…
I’m often entertained every time I search online for any “national day of” lists. I don’t know who is in charge of them, but they seem to change often, and no one source agrees on every recognition. With May…
I’ve had a central theme rolling around my mind recently: Perhaps I overcomplicate things. More often than not, to be completely forthcoming, the exact question has been, “Do we overcomplicate things?” But who am I to question the human…
I often compartmentalize all the significant elements of my life, and my journey with Friedreich’s ataxia (FA) is no exception. I work eight hours a day and leave work behind for the other 16 hours. When it comes to…
A few years back, I wrote a letter to my mom describing my perspective on life and myself. While there was no urgent need to write such a letter, I had a deep desire to affirm for her, as…
I have several friends I’m still actively connected with today who have known me for years. Some knew me when I worked in church ministry, while others knew me as a gas station attendant. A few have been in…
I’ve spent the last six weeks planning and thinking about the things that are important to me. Most of my time and mental energy is focused on personal goals, finances, de:terminence (the nonprofit organization I founded), and habits…
In some ways, I’m probably late to the party. Like many of my friends and fellow columnists at Friedreich’s Ataxia News, adapting to change has been part of living with a progressive disease. I’ve read…
It’s hard to believe we’ve started another year with COVID-19 still in the headlines and on everyone’s mind. I’ve always felt that each year passes faster than expected, but the past two years seem to have flown by even…
This time of year is always chaotic yet fun for me. I enjoy good sweater weather, hot cocoa, and the many Christmas lights I see while driving around town. The chaos comes in many different forms, such as…
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