Kendall is a wife and mother of two navigating life with Friedreich’s ataxia in Austin, Texas. She worked in marketing before “retiring” and becoming a stay-at-home-mom. She is an optimistic warrior fighting for a better future free of FA. She uses her column to help others process both the visible and invisible struggles that come with rare disease and disability.My love language has always been words of affirmation. When someone gives me a genuine compliment or a little bit of encouragement, it has the power to change my mood and affect my whole day. Niceties lighten my…
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On Feb. 25, I attended the Fearless Mom conference at Lake Hills Church in Austin, Texas. There, I heard from Andy Andrews, the New York Times bestselling author of “The Traveler’s Gift,” “The Noticer,” and…
Learning to live within your physical limitations is challenging, especially when the list is constantly growing because of Friedreich’s ataxia (FA) and its ever-progressing symptoms. Lately, I’ve felt trapped in my body, imprisoned by the notion of…
Last in a series. Read parts one and two. Since our family was complete and the pregnancy chapter of my life was done, I decided to reclaim my body and focus on physically fighting Friedreich’s ataxia…
Second in a series. Read part one. In 2013, when I was 25 and newly diagnosed with Friedreich’s ataxia (FA), the only activities that were no longer safe for me were running and wearing high heels.
First in a series. As I continue my journey with Friedreich’s ataxia (FA), I’m frequently asked questions such as: “How long have you been going to physical therapy?” “When did you start the clinical trial?” “How…
Many NFL fans around the world were shaken on Jan. 2, when Buffalo Bills safety Damar Hamlin collapsed on the field during a game against the Cincinnati Bengals. Since then, there has been much talk about a rare…
Happy New Year! I love to use January to reflect on the previous year and picture the possibilities for the new one. I won’t go so far as to set unattainable goals, but I do believe the changing of…
I often write about perspective because I think it’s vitally important to intentionally maintain a healthy, well-rounded perspective when going through daily life with Friedreich’s ataxia (FA). FA is daunting and can quickly overwhelm us when we focus…
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