Caitlin Cloud, a speech-language pathologist, shares why continuing to speak even when it feels difficult is key to preserving communication skills, and how working with a speech therapist can support speech and swallowing over…
Jennifer White explains why heart health is critical in Friedreich’s ataxia (FA), including the risk of silent cardiac complications and symptoms like fatigue and arrhythmias.
Theresa Zesiewicz, MD, discusses how growing clinical trial activity, including gene and protein replacement approaches, may help move Friedreich’s ataxia research forward.
Jennifer Millar, a physical therapist, and Kiersten Riggs share simple exercises to support balance, coordination, and strength in Friedreich’s ataxia (FA). Print…
A hotel ballroom in Orlando filled with laughter as comedian Fiona Cauley performed at the banquet on the final night of the 2026 Annual Ataxia Conference (AAC). The audience responded enthusiastically to her set,…
Alyssa Hammers and her healthcare providers had been trying to determine the cause of her coordination problems, without success. Then, her cousin showed her a TikTok video about living with Friedreich’s ataxia (FA). Hammers…
Living with Friedreich’s ataxia (FA) can make managing daily activities and maintaining independence more difficult, especially as the disease progresses over time. For example, tremors or other FA symptoms can interfere with…
When you’re living with Friedreich’s ataxia (FA), maintaining independence can become more challenging over time due to mobility challenges and other symptoms. At the 2026 Annual Ataxia Conference (AAC) in Orlando, Florida, the session “Rehabilitation…
Living with Friedreich’s ataxia (FA) often involves fatigue, a sense of profound exhaustion that can affect your independence and quality of life. A session presented at the 2026 Annual Ataxia Conference…
Speech and swallowing issues are common with Friedreich’s ataxia (FA) and can be challenging to manage. At the 2026 Annual Ataxia Conference in Orlando, Florida, one presentation focused on helping people…