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Adults Living with FA
This is where people with FA can discuss general things in their life and their goals. Topics may include discussion of any physical exercise, any tips or tricks you’ve found in keeping up your personal hygiene, stories of success and trials if you are a parent diagnosed with FA, questions about maintaining a career or jobs, and more. Also a place for those recently diagnosed to get advice from others.
- 3 hours, 51 minutes ago
Relationships & FA
Significant relationships (either with friends, family, or romantic partners) is a difficult subject on its own, but adding FA into the mix seems complicated and may be overwhelming. Here we can discuss any topics regarding relationships here.
- 2 weeks, 6 days ago
Assistive Device Usage
For all those looking in to using a walker, cain, wheelchair, assistance pole, handlebars, etc. If you have a very positive or very discouraging experience with any type, please share your story here.
- 1 week, 5 days ago
FA Research, Scientific News, & Clinical Trials
This forum is for sharing and discussing any scientific study. If you have a question about something you read, please ask the community here. Also to discuss anything that may alleviate the symptoms of FA.
- 4 days, 17 hours ago
Parents & Caregivers of Those with FA
This forum is for those who aren’t diagnosed with FA themselves, but are the parent or caretaker of someone who is. Tell your stories and find support here.
- 1 month ago
About Our Forum
This forum serves as a place where anyone impacted by Friedreich’s Ataxia (FA) -- both patients and caregivers -- can share stories and life advice with one another. Often, living with a rare disorder like FA feels lonely. Facing troubles that seem unique to you causes isolation and loneliness. We seek to eliminate that by connecting people in the Friedreich’s Ataxia community to share their own stories, tips, successes, and troubles with one another in this forum by opening up a dialogue between those in the FA community!
- 4 months, 1 week ago
Nutrition, Supplements, and Exercise
This forum is for sharing your personal fitness journey, and for taking about why remaining active is important to you. Any tips, recipes, and exercise regimen examples are welcome!
- 5 days, 23 hours ago
This forum is designed for patients, caregivers, family and friends who would like more information on different FA resources. These resources can include support groups, press releases, events and more!
- 2 weeks, 5 days ago
FA Patients Under 20
A place for young people with a diagnosis of FA to ask questions and talk about issues that matter to them. Whether it’s going to school, getting along with your parents, opening up to your friends about FA, or any other topic important in a young person’s life.
- 2 weeks, 5 days ago
- Adults Living with FA