Friedreich’s Ataxia News Community Forums Dating, Relationships, and Marriage How do you answer awkward questions about FA from family and/or friends?

  • How do you answer awkward questions about FA from family and/or friends?

    Posted by Community Member on January 24, 2023 at 9:00 am

    Everyone in the FA community can relate to having to deal with awkward questions when it comes to being asked about Friedreich’s Ataxia.

    Can you provide an example of one you received? Who was it from? What were your response and reaction?

    Community Member replied 3 Members · 4 Replies
  • 4 Replies
  • Community Member

    Member

    My family and I were at church recently, and an acquaintance of mine asked my son with FA why he was using his wheelchair that day instead of his walker. She was concerned and meant well, but he felt like it was a personal question and didn’t want to answer.

  • Community Member

    Member

    That’s a tough one, because not everyone understands having to use multiple assistive devices depending on the situation.

  • Community Member

    Member

    Depends who’s asking. With close family, I explain more and correct misconceptions. With random relatives or friends-of-friends, I give a surface-level answer and protect my energy. I learned the hard way that not every question deserves a full explanation.

    • Community Member

      Member

      That is so true. It’s always a toss up who deserves more of an explanation, and your time and energy.

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