Activity

SaaS providers generally provide access to internet-based software for corporations and businesses on a monthly rental basis, or in some cases, based on per-user basis. Quite a few high end software including entire Adobe’s suite of editing and graphic design software are now offered as a cloud subscription service. Some SaaS applications need…[Read more]

Glad it finally came! Are you enjoying it?

I’m always so shocked at how much they cost!!

My chair is here! Only took 7, yes seven, months! Now we’ll see how long insurance takes. Because even though I have to pay 20% I had to pay $2300 before NuMotion would order the chair.  And that better not be 20%!

Thanks for helping with this question!

Love hearing y’all’s perspectives!

I like your idea of saying something positive and not focusing on our limitations. There is still so mchh we can do, even it has to be done a different way.

I used to tell people I was a Wheeble too!

Or having FA was like playing the game where you had to spin around with a bat/broom touching your forehead, stand up and walk straight. It’s fun to watch but not to live with.

when i could still walk, i would say that i’m a Wheeble Wable that does not fall down”  I even put two Wheebles on my wedding cake.

when you have to describe FA with marbles in your mouth “neuromuscular” is too long of a word. your description is too long.   most importantly, it’s not really worth explaining it to others as they usually respond with such pity and sorrow, that my spirit is crushed and i only think of the negatives in my life.  the fact is, i’m doing lots of gr…[Read more]

I usually say it is a neuromuscular disease  that affects my son’s speech and balance, and if no treatment is found, then he will lose his ability to walk over time.

Thank you so much! I am very pleased with how the event turned out, considering the rainy weekend and still being in a pandemic. Already looking forward to next year!

💪🏼💪🏼

Having seen how the selection was done for participants in the trial, it required someone of paralympic standard recumbant cycling ability with corresponding breathing and endurance. Whilst being hopeful and grateful for any company pursuing a treatment I do wonder how effective it will be for the vast majority that couldn’t achieve the lofty…[Read more]

This is my reminder for today!