Activity

Here in Italy we have a difficult situation regarding architectural barriers … sometimes they are really bad. But usually (perhaps also because of this) restaurant managers are ready to help.
It is not the best but it is already something!
greetings to all

@daniellichi I have issues in the dark too. I have nightlights set up in my apartment in case I have to get up in the middle of the night

@davidr thank you for the suggestion!

thanks for info.

This happens to me. It feels kind of like the protein in my muscle is breaking down too fast, which it probably is. So, I will take a hydrologized whey supplement. It works for me. I also do this before and after my morning workouts.

Hello. I could not say that I have vision problems. I even did a check in the right eye and in the right eye I have -75 but it’s ok and in the left eye I am very good. Instead I have very big problems walk into the dark.

I have been attending the FA Symposium hosted by the Children’s Hospital of Philadelphia every year. I love going because it is a great way to connect with other FA members that you don’t see often, hear updates from reseatcbeda of their work and get to meet the researchers and say thank you for all they are doing for us.

This year I started to intensify my exercises. I do 7 km in the morning with my medicine bike and some exercises: genoflexions, etc. In the evening, I walk 5 km. I mention that I am at the beginning with FA, until last year in the summer when I made a rupture at the ligament I could run. I try to wright, I can do that but not so good.

As I understand it, it was very gradual. He’d have pain in his eyes, but this being a relatively new symptom, only eyedrops were used to relieve the pain. After some time, he lost his peripheral vision (like a horse w/ blinders).
After that his tunnel vision narrowed. Now it’s just blurs.

Lutein may have helped…

One silver lining is that his…[Read more]

During my recent visit to ophthalmologist, I was said that I had perfect vision 20/20 but I said that I have a problem with the low light walk, for which my doctor replied that it might be because the neuromuscular disease I have.I am doing nothing very special to manage this, but I genuinely feel that meditation is helping me (I started…[Read more]