Frankie Perazzola

We all have them. Let’s hear them. My guilty pleasure is hot Cheetos, what about you?

One thing that has made life a lot easier is installing a cup holder on my walker. Before that, I would place items on my walker and because of my instability, they would usually knock over and spill.

Do you have a cupholder on your device? How has that benefitted you?

No matter how hot it is outside. i always have socks on. It gets dangerous walking around the house.

Does anyone have recommendations for grip socks?

I always have a tough time describing exactly what FA is when other people ask me. Over the years, my divorce and what are usually say is that my muscles are deteriorating over time.

How would you describe FA to someone who has no idea what it even is?

Just curious, who here is going to be taking the vaccine? Or, let us know if you’ve already taken it. I’m curious to see how someone with FA reacts to it. 100% transparency is appreciated!

Because we have restrictions on our ability to move, especially our legs and and arms, stretching can be vital in keeping up muscle strength.

Although you may not feel like you’re working out, for us who have FA, it takes a lot more energy and effort to get into a stretching position. Therefore it becomes a work out to us.

Do you stretch r…[Read more]

When it comes to keeping maintenance on my walkers or wheelchair, I constantly have to take care of the spokes of the wheels and take out all the hair that gets caught on my wheels. It’s extremely annoying but it’s some thing I can’t avoid.

Do you do this as well? If so, how often? Do you have any tricks or tips?

Personally, I’ve always been the type of person who says unrealistic expectations at the beginning of the year and then kick myself for not following through. For example, losing 40 pounds or something like that.

While that is a great goal to have, I believe there are ways to achieve this by setting smaller goals. Instead of focusing on the n…[Read more]

While we all have our own schedules and methods for getting up each morning, setting intentions for the day can be extremely beneficial to us all. It truly helps me feel better about starting the day. Intentions are personal to you and your specific life and can be whatever you want!

Here are some examples:

-“I will cross 2 things off my…[Read more]

Hey everyone!

Hope you enjoyed your time during the holidays and ringing in the new year! We had a much needed break and were ready to reconnect with you all.

Did anyone make any resolutions or goals for 2021? What is something you would like to work on?

One of my bigger goals is to learn how to accept and ask for help when needed. To…[Read more]

With all of us being located in different places in the world, we all have extremely different diets, specifications, preferences and allergies. With consuming food, all of us bring a different plate to the table!

When it comes to eating throughout the day, what does breakfast lunch and dinner typically look like for you guys?

It’s Monday, no matter where you are in the world and no matter what your schedule looks like, we can all relate, finding motivation these days is a little bit harder.

Today’s topic is going to be something a little more fun, if you don’t already, make a playlist that is shareable for us so we can see your taste in music!

Here’s one of my rece…[Read more]

One of the things that I cannot get around when dealing with FA is a how often my muscles need to be stretched out.

I also realize that when I stretch and use my foam roller delete, I don’t experience restless legs or leg cramps. I found out one of the easiest things to do is stretching your bed as soon as you wake up.

Has anyone tried this? W…[Read more]

Using a walker and my wheelchair allows me to vacuum. I wouldn’t be able to vacuum without holding onto something sturdy or sitting down.

Do you guys have any hacks or tips when it comes to vacuuming? Does anyone have cordless accessories and how much of a game changer is it?

Whether you are a parent, friend, loved one etc. the world is a crazy place right now.

Since we don’t have too many topics regarding caretakers, I wanted to do a genuine check in and see how each of you are doing?

How are you managing your stress during this time? Are there any resources we can list or help you find in order to make your s…[Read more]

Personally, I live in Southern California so I fortunately do not experience extreme cold. However, with an understanding that a lot of people on this forum live in places where it snows frequently, I have the upmost respect for you.

Even though the amount of cold I experience is not nearly as cold as some of you experience, I still have days…[Read more]

My co-forum moderator and I have been made aware of the user friendly situation when it comes to participating on the forum.

What we’ve heard is that it’s not the most idealistic for someone to reply on the phone, the buttons are extremely small and the interface is a little more difficult to navigate.

When it comes to the forum, is there any…[Read more]

Having many conversations, I have realized that a majority of people with disabilities have numerous amounts of assistive devices.

When it gets colder, I tend to use my wheelchair a lot more. My joints don’t work as great as they were during this summer.

How about you? Do you have a specific type of tire or assistive device that you used d…[Read more]