@simon16
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Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 2 months ago
Hi Lichi
Download Telegram App to participate in ongoing chats …I have just joined recently myself
https://t.me/joinchat/J682xhFAMTiMpCo3Of5PXQ -
Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 2 months ago
Also Facebook
https://www.facebook.com/groups/2601479636546565/ -
Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 6 months, 1 week ago
Hi can anyone give an update on how progressing with this drug
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alexwillson and
Mary kelly are now friends 7 months ago
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Jean Walsh and
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Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 8 months, 2 weeks ago
Hi everyone..any more updates..I have appointment on 26 July with my sons doctor..really hoping to persuade them to prescribe
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Mary kelly posted a new activity comment 9 months, 3 weeks ago
Thank you
Has there been any improvement in your child
I’m sorry to be asking you so many questions -
Mary kelly posted a new activity comment 9 months, 3 weeks ago
Could you tell me list please..so I can be sure
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My list is on Russian, you can surch in internet for instructions for
Intelence by Jannsen Sillag-
My Russian friend buy for me in Moscow
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Thank you
Has there been any improvement in your child
I’m sorry to be asking you so many questions
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Mary kelly posted a new activity comment 9 months, 3 weeks ago
Hi Dobrinka
That sounds brilliant..where do you buy them from -
Mary kelly posted a new activity comment 9 months, 3 weeks ago
Thank you
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Mary kelly posted an update 9 months, 3 weeks ago
@dobiiv2
Hi can you tell me if there is lactose in the brand of etravirine you use
My son is allergic to lactose and I am trying to discover a brand that doesn’t have it
Thank you
Mary-
Hi, drug name is Intelence ,produced by Jannsen, they have patent.
I think don’t another brand.
I will check instructions and write you about lactose-
Thank you
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In my Russian instructions don’t have lactose in ingredients
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Hi Dobrinka
That sounds brilliant..where do you buy them from -
Could you tell me list please..so I can be sure
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My list is on Russian, you can surch in internet for instructions for
Intelence by Jannsen Sillag-
My Russian friend buy for me in Moscow
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Thank you
Has there been any improvement in your child
I’m sorry to be asking you so many questions
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hamerlinck Christa and
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Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 9 months, 4 weeks ago
Hi everyone..can anybody tell me if any brand you are using ..lactose free.
As my son is allergic to it
Please let me know asap…as I am planning on going to Turkey to purchase
Thank you
Mary -
Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 11 months ago
Hi everyone
Can you tell me what blood tests need to be done?My 16 year old son very anxious to try this so far doctor hasn’t agreed
Has anyone got an address etc in Turkey so I can order .
Thank you
Mary -
Ytr and
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Catherine Vasquez Ortiz and
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Mary kelly replied to the topic Therapeutic Prospects for Friedreich's Ataxia in the forum FA Research, Scientific News, & Clinical Trials 12 months ago
Thank you Shandra
Can you explain in layman’s terms please…is generally therapy available or how soon do you think -
Mary kelly changed their profile picture 12 months ago
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Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 12 months ago
Hi I’m new…I’m so excited reading the feedback
My 15 year old son has friedrichs,I’m going to speak to his doctors about the possibility of prescribing this for him
I found this forum by accident searching about etravirine -
Frankie Perazzola and
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