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Mary kelly

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@simon16

@dobiiv2 Hi can you tell me if there is lactose in the brand of etravirine you use My son is allergic to lactose and I am trying to discover a brand that doesn’t have it Thank you Mary View
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  • Profile picture of Mary kelly

    Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 11 months, 3 weeks ago

    Hi Lichi
    Download Telegram App to participate in ongoing chats …I have just joined recently myself
    https://t.me/joinchat/J682xhFAMTiMpCo3Of5PXQ

  • Profile picture of Mary kelly

    Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 11 months, 3 weeks ago

    Also Facebook
    https://www.facebook.com/groups/2601479636546565/

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    Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 3 months ago

    Hi can anyone give an update on how progressing with this drug

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    alexwillson and Profile picture of Mary kellyMary kelly are now friends 1 year, 4 months ago

  • Profile picture of Jean Walsh

    Jean Walsh and Profile picture of Mary kellyMary kelly are now friends 1 year, 4 months ago

  • Profile picture of Mary kelly

    Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 6 months ago

    Hi everyone..any more updates..I have appointment on 26 July with my sons doctor..really hoping to persuade them to prescribe

  • Profile picture of Mary kelly

    Mary kelly posted a new activity comment 1 year, 7 months ago

    Thank you
    Has there been any improvement in your child
    I’m sorry to be asking you so many questions

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    • Profile picture of Mary kelly

      Mary kelly posted a new activity comment 1 year, 7 months ago

      Could you tell me list please..so I can be sure

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        • Profile picture of Dobrinka
          Dobrinka replied 1 year, 7 months ago
          My list is on Russian, you can surch in internet for instructions for
          Intelence by Jannsen Sillag
            • Profile picture of Dobrinka
              Dobrinka replied 1 year, 7 months ago
              My Russian friend buy for me in Moscow
              • Profile picture of Mary kelly
                Mary kelly replied 1 year, 7 months ago
                Thank you
                Has there been any improvement in your child
                I’m sorry to be asking you so many questions
            • Profile picture of Mary kelly

              Mary kelly posted a new activity comment 1 year, 7 months ago

              Hi Dobrinka
              That sounds brilliant..where do you buy them from

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              • Profile picture of Mary kelly

                Mary kelly posted a new activity comment 1 year, 7 months ago

                Thank you

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                • Profile picture of Mary kelly

                  Mary kelly posted an update 1 year, 7 months ago

                  @dobiiv2
                  Hi can you tell me if there is lactose in the brand of etravirine you use
                  My son is allergic to lactose and I am trying to discover a brand that doesn’t have it
                  Thank you
                  Mary

                  • Profile picture of Dobrinka
                    Dobrinka replied 1 year, 7 months ago
                    Hi, drug name is Intelence ,produced by Jannsen, they have patent.
                    I think don’t another brand.
                    I will check instructions and write you about lactose
                      • Profile picture of Mary kelly
                        Mary kelly replied 1 year, 7 months ago
                        Thank you
                        • Profile picture of Dobrinka
                          Dobrinka replied 1 year, 7 months ago
                          In my Russian instructions don’t have lactose in ingredients
                            • Profile picture of Mary kelly
                              Mary kelly replied 1 year, 7 months ago
                              Hi Dobrinka
                              That sounds brilliant..where do you buy them from
                              • Profile picture of Mary kelly
                                Mary kelly replied 1 year, 7 months ago
                                Could you tell me list please..so I can be sure
                                  • Profile picture of Dobrinka
                                    Dobrinka replied 1 year, 7 months ago
                                    My list is on Russian, you can surch in internet for instructions for
                                    Intelence by Jannsen Sillag
                                      • Profile picture of Dobrinka
                                        Dobrinka replied 1 year, 7 months ago
                                        My Russian friend buy for me in Moscow
                                        • Profile picture of Mary kelly
                                          Mary kelly replied 1 year, 7 months ago
                                          Thank you
                                          Has there been any improvement in your child
                                          I’m sorry to be asking you so many questions
                                • Profile picture of hamerlinck Christa

                                  hamerlinck Christa and Profile picture of Mary kellyMary kelly are now friends 1 year, 7 months ago

                                • Profile picture of Mary kelly

                                  Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 7 months ago

                                  Hi everyone..can anybody tell me if any brand you are using ..lactose free.
                                  As my son is allergic to it
                                  Please let me know asap…as I am planning on going to Turkey to purchase
                                  Thank you
                                  Mary

                                • Profile picture of Mary kelly

                                  Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 8 months ago

                                  Hi everyone
                                  Can you tell me what blood tests need to be done?My 16 year old son very anxious to try this so far doctor hasn’t agreed
                                  Has anyone got an address etc in Turkey so I can order .
                                  Thank you
                                  Mary

                                • Profile picture of Ytr

                                  Ytr and Profile picture of Mary kellyMary kelly are now friends 1 year, 9 months ago

                                • Profile picture of Catherine Vasquez Ortiz

                                  Catherine Vasquez Ortiz and Profile picture of Mary kellyMary kelly are now friends 1 year, 9 months ago

                                • Profile picture of Mary kelly

                                  Mary kelly replied to the topic Therapeutic Prospects for Friedreich's Ataxia in the forum FA Research, Scientific News, & Clinical Trials 1 year, 9 months ago

                                  Thank you Shandra
                                  Can you explain in layman’s terms please…is generally therapy available or how soon do you think

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                                  Mary kelly changed their profile picture 1 year, 9 months ago

                                • Profile picture of Mary kelly

                                  Mary kelly replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 9 months ago

                                  Hi I’m new…I’m so excited reading the feedback
                                  My 15 year old son has friedrichs,I’m going to speak to his doctors about the possibility of prescribing this for him
                                  I found this forum by accident searching about etravirine

                                • Profile picture of Frankie Perazzola

                                  Frankie Perazzola and Profile picture of Mary kellyMary kelly are now friends 1 year, 9 months ago

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