@maryjane69
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Catherine Vasquez Ortiz and
Matt Lafleur are now friends 1 year, 9 months ago -
Catherine Vasquez Ortiz replied to the topic Siblings in the forum Relationships & FA 1 year, 9 months ago
Good Afternoon Everyone! The topic on Siblings. I have two older brothers with FA I as well have it. What I don’t understand is that we three have FA but they don’t have a C Shape Spine as I do. Can siblings have the same thing but with different symptoms?
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Yes absolutely! My first FA symptom was flat feet, and hers was high arches in her feet. So even though we are siblings FA symptoms are really random for everyone with FA!
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Catherine Vasquez Ortiz replied to the topic Relationships with doctors in the forum Relationships & FA 1 year, 10 months ago
I’ve already share my experience with doctors. Now I just found out the doctor I have seen at USF is leaving? Now what am I going to do?
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Catherine Vasquez Ortiz replied to the topic Advice or encouragement in the forum Parents & Caregivers of Those with FA 1 year, 10 months ago
Good Morning Everyone! Frankie is there any way you can call me, I really need your Advice on something,
813-493-5268
Catherine-
Feel free to send me a private message!
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Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago
Frankie and Matt hello I’m not sure how to reply to a message but all the doctor’s that I have called First are already judging me from the way I speak. I have been looking for a Primary Care just to see me and try and get referrals to see other doctors. I have a Case Manager through Humana and she also has been helping me. We called USF this…[Read more]
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Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago
Frankie thank you for replying. I’ve been to USF and seen Dr. Z the problem is I need a referral to see her and No Primary care doctor will take me as a patient. I have Humana and I have tried and tried to a doctor and none of them are educated on this. It’s so frustrating 😫 Can you see if you can find out something for me? Thanks
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Catherine, why wont doctors see you? Can you give me a little more information?
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Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago
Jamie I read your post and I really myself can’t Answer that. It’s Anyone’s Right to Choose. But that’s how people think. Myself I need to stay Strong 💪 and focus on my safety. I have no caregiver No Doctors I really don’t know what to do with what’s going on
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Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago
I’m sorry everything came out double. I can really spell. LoL
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Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago
Hello I’m 49 years old aand I have FA it came Llate Onset. Now my ssymtoms are getting wworse Everyday. And tthe worse part is No DDoctor here will see mMe. I’m in Tampa FFlorida. Do you have aany Suggestion on this. I know that I am rresponding to the wrong topic but I’m new and don’t know how tto start one.
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Hi Catherine! No worries! Actually, Tampa is a main hub for FA research. If you visit the FARA website, you will find everything you need for support and resources. Please let me know if you need anything else.
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Beautiful reply. Frankie is the bomb.
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Catherine, you are in the right place. We are here for you. Your story sounds incredibly frustrating. Why don’t doctors see you? That sounds really awful.
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Catherine Vasquez Ortiz and
Luciana Carbonari are now friends 1 year, 10 months ago
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Catherine Vasquez Ortiz and
Naeem are now friends 1 year, 10 months ago -
Catherine Vasquez Ortiz and
Jessie Beatty are now friends 1 year, 10 months ago -
Catherine Vasquez Ortiz and
Sharon are now friends 1 year, 10 months ago -
Catherine Vasquez Ortiz posted an update 1 year, 10 months ago
Why doesn’t anyone comment on a question that I have? I’m just looking for answers to help me educate myself
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Catherine Vasquez Ortiz posted an update 1 year, 10 months ago
I have a question that has been going through my head. I want to know if the more you do meaning actively will I be able to be more active or if I just sit and do nothing but think will the symtoms take over me? In the past 7 months I have been worrying about my mom and I have noticed that my symtoms are getting worse. Does anyone know if that’s true
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Great question! As far as I understand it, if you don’t use it, you will lose it! So doing whatever activities you can do helps your muscles hold onto some abilities that FA takes away. (Note that nothing we can do at this point will completely stop FA’s progression, but remaining as active as we can be seems to help slow the progression.)
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Catherine Vasquez Ortiz posted a new activity comment 1 year, 10 months ago
I also stay indoors and it’s driving me nuts! How can I cope with that?. I feel like I’m getting worse Everyday. I just think I’m focusing on this too much. Do you have any ideas for me? I have no care giver and it’s very hard to do alot of things
I need to find a doctor here who is educated on FA. -
Catherine Vasquez Ortiz and
Ytr are now friends 1 year, 10 months ago
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Catherine Vasquez Ortiz and
Egan are now friends 1 year, 10 months ago -
Catherine Vasquez Ortiz and
Naheem are now friends 1 year, 10 months ago
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Catherine Vasquez Ortiz and
Rogier are now friends 1 year, 10 months ago - Load More
