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Catherine Vasquez Ortiz

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@maryjane69

Why doesn’t anyone comment on a question that I have? I’m just looking for answers to help me educate myself View
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  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz and Profile picture of Matt LafleurMatt Lafleur are now friends 1 year, 9 months ago

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz replied to the topic Siblings in the forum Relationships & FA 1 year, 9 months ago

    Good Afternoon Everyone! The topic on Siblings. I have two older brothers with FA I as well have it. What I don’t understand is that we three have FA but they don’t have a C Shape Spine as I do. Can siblings have the same thing but with different symptoms?

    • Profile picture of Matt Lafleur
      Matt Lafleur replied 1 year, 9 months ago

      Yes absolutely! My first FA symptom was flat feet, and hers was high arches in her feet. So even though we are siblings FA symptoms are really random for everyone with FA!

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz replied to the topic Relationships with doctors in the forum Relationships & FA 1 year, 10 months ago

    I’ve already share my experience with doctors. Now I just found out the doctor I have seen at USF is leaving? Now what am I going to do?

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz replied to the topic Advice or encouragement in the forum Parents & Caregivers of Those with FA 1 year, 10 months ago

    Good Morning Everyone! Frankie is there any way you can call me, I really need your Advice on something,
    813-493-5268
    Catherine

    • Profile picture of Frankie Perazzola
      Frankie Perazzola replied 1 year, 9 months ago

      Feel free to send me a private message!

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago

    Frankie and Matt hello I’m not sure how to reply to a message but all the doctor’s that I have called First are already judging me from the way I speak. I have been looking for a Primary Care just to see me and try and get referrals to see other doctors. I have a Case Manager through Humana and she also has been helping me. We called USF this…[Read more]

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago

    Frankie thank you for replying. I’ve been to USF and seen Dr. Z the problem is I need a referral to see her and No Primary care doctor will take me as a patient. I have Humana and I have tried and tried to a doctor and none of them are educated on this. It’s so frustrating 😫 Can you see if you can find out something for me? Thanks

    • Profile picture of Frankie Perazzola
      Frankie Perazzola replied 1 year, 10 months ago

      Catherine, why wont doctors see you? Can you give me a little more information?

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago

    Jamie I read your post and I really myself can’t Answer that. It’s Anyone’s Right to Choose. But that’s how people think. Myself I need to stay Strong 💪 and focus on my safety. I have no caregiver No Doctors I really don’t know what to do with what’s going on

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago

    I’m sorry everything came out double. I can really spell. LoL

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz replied to the topic Friedreich's Ataxia, Disability, and Breaking Down Barriers in Care Settings in the forum Living with FA 1 year, 10 months ago

    Hello I’m 49 years old aand I have FA it came Llate Onset. Now my ssymtoms are getting wworse Everyday. And tthe worse part is No DDoctor here will see mMe. I’m in Tampa FFlorida. Do you have aany Suggestion on this. I know that I am rresponding to the wrong topic but I’m new and don’t know how tto start one.

    • Profile picture of Frankie Perazzola
      Frankie Perazzola replied 1 year, 10 months ago

      Hi Catherine! No worries! Actually, Tampa is a main hub for FA research. If you visit the FARA website, you will find everything you need for support and resources. Please let me know if you need anything else.

      • Profile picture of Matt Lafleur
        Matt Lafleur replied 1 year, 10 months ago

        Beautiful reply. Frankie is the bomb.

    • Profile picture of Matt Lafleur
      Matt Lafleur replied 1 year, 10 months ago

      Catherine, you are in the right place. We are here for you. Your story sounds incredibly frustrating. Why don’t doctors see you? That sounds really awful.

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz and Profile picture of Luciana CarbonariLuciana Carbonari are now friends 1 year, 10 months ago

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    Catherine Vasquez Ortiz and Profile picture of NaeemNaeem are now friends 1 year, 10 months ago

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    Catherine Vasquez Ortiz and Profile picture of Jessie BeattyJessie Beatty are now friends 1 year, 10 months ago

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    Catherine Vasquez Ortiz and Profile picture of SharonSharon are now friends 1 year, 10 months ago

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz posted an update 1 year, 10 months ago

    Why doesn’t anyone comment on a question that I have? I’m just looking for answers to help me educate myself

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz posted an update 1 year, 10 months ago

    I have a question that has been going through my head. I want to know if the more you do meaning actively will I be able to be more active or if I just sit and do nothing but think will the symtoms take over me? In the past 7 months I have been worrying about my mom and I have noticed that my symtoms are getting worse. Does anyone know if that’s true

    • Profile picture of Matt Lafleur
      Matt Lafleur replied 1 year, 10 months ago

      Great question! As far as I understand it, if you don’t use it, you will lose it! So doing whatever activities you can do helps your muscles hold onto some abilities that FA takes away. (Note that nothing we can do at this point will completely stop FA’s progression, but remaining as active as we can be seems to help slow the progression.)

  • Profile picture of Catherine Vasquez Ortiz

    Catherine Vasquez Ortiz posted a new activity comment 1 year, 10 months ago

    I also stay indoors and it’s driving me nuts! How can I cope with that?. I feel like I’m getting worse Everyday. I just think I’m focusing on this too much. Do you have any ideas for me? I have no care giver and it’s very hard to do alot of things
    I need to find a doctor here who is educated on FA.

    • Profile picture of Catherine Vasquez Ortiz

      Catherine Vasquez Ortiz and Profile picture of YtrYtr are now friends 1 year, 10 months ago

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      Catherine Vasquez Ortiz and Profile picture of EganEgan are now friends 1 year, 10 months ago

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      Catherine Vasquez Ortiz and Profile picture of NaheemNaheem are now friends 1 year, 10 months ago

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      Catherine Vasquez Ortiz and Profile picture of RogierRogier are now friends 1 year, 10 months ago

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