Posts by: Kendall Harvey

Kendall Harvey

Kendall is a wife and mother of two navigating life with Friedreich's Ataxia in Austin, Texas. She worked in marketing before "retiring" and becoming a stay-at-home-mom. She is an optimistic warrior fighting for a better future, free of FA.

October 18, 2018October 17, 2018

I’ve Adopted the Concept of ‘Besides FA’

Columns, My Darling Disability - a Column by Kendall Harvey

I recently began participating in a 48-week, Phase 2 clinical trial for Friedreich’s ataxia. The way I understand it, the study’s investigational treatment is designed to make the cells ... Read more

September 27, 2018September 25, 2018

New to Friedreich’s Ataxia?

Columns, My Darling Disability - a Column by Kendall Harvey

The first time I ever heard of Friedreich’s ataxia was the day I was diagnosed with the disease in 2013 at the age of 25. To say I was ... Read more

September 20, 2018September 18, 2018

I’m Not Yet Sure How to Fight My Fatigue

Columns, My Darling Disability - a Column by Kendall Harvey

Friedreich’s ataxia causes a wide array of symptoms. Every FA patient experiences the disease differently. For me, fatigue is a major symptom. Before I experienced FA, I thought I ... Read more

September 13, 2018September 11, 2018

Seasons of Life with Friedreich’s Ataxia

Columns, My Darling Disability - a Column by Kendall Harvey

Since my 2013 Friedreich’s ataxia diagnosis, the condition has consumed a part of every day. I was prepared for the physical changes that would come with FA, but the ... Read more

September 6, 2018September 4, 2018

The Emotional Workout of Physical Therapy

Columns, My Darling Disability - a Column by Kendall Harvey

In Friedreich’s ataxia (FA) care, we don’t really have treatment options. There are clinical trials taking place to work on treatments and hopefully one day, a cure. But until ... Read more

August 30, 2018August 28, 2018

My Big (Literal) Break

Columns, My Darling Disability - a Column by Kendall Harvey

Editor’s note: This post includes images of a bone break that may be disturbing to readers. For some time now, I’ve needed to use a walker (or another mobility ... Read more

April 12, 2018April 11, 2018

Fight or Flight in FA Patients

Columns, My Darling Disability - a Column by Kendall Harvey

Almost everyone can point to moments in their lives dictated by the choice: fight or flight. By definition, the fight-or-flight response is a physiological reaction that occurs in response to a ... Read more

March 22, 2018March 20, 2018

What rideATAXIA Means to Me

Columns, My Darling Disability - a Column by Kendall Harvey

Friedreich’s ataxia (FA) is a big, overwhelming disease. And with it being so rare, it can feel very isolating. My immediate family and I had never even heard of ... Read more

March 8, 2018March 7, 2018

Dealing with Progression

Columns, My Darling Disability - a Column by Kendall Harvey

As my Friedreich’s ataxia symptoms progress, so do my feelings and emotions about this complex disease. When diagnosed, I accepted it pretty quickly. I obviously knew that something was ... Read more

February 8, 2018February 7, 2018

Friedreich’s Ataxia and Marriage: Dealing with the Diagnosis

Columns, My Darling Disability - a Column by Kendall Harvey

When I met my husband Kyle in high school at the age of 16, everything was perfect. We were perfect. We were madly in love with limitless possibilities ahead ... Read more

February 1, 2018January 31, 2018

Pregnancy and Friedreich’s Ataxia

Columns, My Darling Disability - a Column by Kendall Harvey

When diagnosed with Friedreich’s ataxia (FA) at the age of 25, I was devastated. I thought I would have really poor quality of life and that all of the ... Read more

January 25, 2018January 25, 2018

An Introduction to My Darling Disability

Columns, My Darling Disability - a Column by Kendall Harvey

My name is Kendall and I was diagnosed with Friedreich’s ataxia (FA) at the age of 25. I grew up in Katy, Texas, where my childhood was quite happy. I was always ... Read more

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