Posts by: Kendall Harvey

Kendall Harvey

Kendall is a wife and mother of two navigating life with Friedreich's Ataxia in Austin, Texas. She worked in marketing before "retiring" and becoming a stay-at-home-mom. She is an optimistic warrior fighting for a better future, free of FA.

February 14, 2019February 13, 2019

The Hopes and Risks of Starting a Friedreich’s Ataxia Clinical Trial

Columns, My Darling Disability - a Column by Kendall Harvey

When diagnosed with Friedreich’s ataxia, the first things people usually ask are: “What can I do about this? Is there a treatment or cure? Where do I sign up?” ... Read more

February 7, 2019February 14, 2019

When Life Hands You Lemons

Columns, My Darling Disability - a Column by Kendall Harvey

“Life isn’t fair.” “No one said this would be easy.” We have all heard these platitudes and we’ve all repeated them. And yes, there is truth in these well-worn ... Read more

January 24, 2019January 31, 2019

Similarities in Parenting and Friedreich’s Ataxia

Columns, My Darling Disability - a Column by Kendall Harvey

At first, I resented having Friedreich’s ataxia (FA) because it hasn’t allowed me to be the mom I always imagined I would be. Now that I have a couple ... Read more

January 17, 2019January 24, 2019

A Friedreich’s Ataxia Explainer

Columns, My Darling Disability - a Column by Kendall Harvey

Describing a progressive genetic disease like Friedreich’s ataxia (FA) is difficult. It has a wide range of symptoms, most of which are unique to FA and not easily understood ... Read more

December 6, 2018January 23, 2019

How Friedreich’s Ataxia Redefined My Faith

Columns, My Darling Disability - a Column by Kendall Harvey

I grew up in a church-going family that was always involved in ministry. We spent at least three days a week at church. I had a sound knowledge of ... Read more

November 29, 2018November 27, 2018

A Physical Therapist Shares Her Perspective on Working with FA Patients

Columns, My Darling Disability - a Column by Kendall Harvey

I have been working with my physical therapist, Kelli, for a year and a half. She is brilliant at what she does and has become a dear friend. I ... Read more

November 15, 2018November 14, 2018

My Journey to a Friedreich’s Ataxia Diagnosis, Part 3

Columns, My Darling Disability - a Column by Kendall Harvey

Third and final in a series. In a previous column, I discussed the tests I underwent to diagnose Friedreich’s ataxia. “Kendall, I was afraid that this might be the ... Read more

November 8, 2018November 6, 2018

My Journey to a Friedreich’s Ataxia Diagnosis, Part 2

Columns, My Darling Disability - a Column by Kendall Harvey

Second in a series. In a previous column, I discussed my active childhood and early signs that something wasn’t right. As the evidence began to pile up, I started ... Read more

November 1, 2018October 30, 2018

My Journey to a Friedreich’s Ataxia Diagnosis, Part 1

Columns, My Darling Disability - a Column by Kendall Harvey

First in a series. From the time we are toddlers, we start dreaming about the future. We want to be firefighters, teachers, rock stars, race car drivers, or in ... Read more

October 18, 2018October 17, 2018

I’ve Adopted the Concept of ‘Besides FA’

Columns, My Darling Disability - a Column by Kendall Harvey

I recently began participating in a 48-week, Phase 2 clinical trial for Friedreich’s ataxia. The way I understand it, the study’s investigational treatment is designed to make the cells ... Read more

September 27, 2018February 8, 2019

New to Friedreich’s Ataxia?

Columns, My Darling Disability - a Column by Kendall Harvey

The first time I ever heard of Friedreich’s ataxia was the day I was diagnosed with the disease in 2013 at the age of 25. To say I was ... Read more

September 20, 2018September 18, 2018

I’m Not Yet Sure How to Fight My Fatigue

Columns, My Darling Disability - a Column by Kendall Harvey

Friedreich’s ataxia causes a wide array of symptoms. Every FA patient experiences the disease differently. For me, fatigue is a major symptom. Before I experienced FA, I thought I ... Read more

September 13, 2018September 11, 2018

Seasons of Life with Friedreich’s Ataxia

Columns, My Darling Disability - a Column by Kendall Harvey

Since my 2013 Friedreich’s ataxia diagnosis, the condition has consumed a part of every day. I was prepared for the physical changes that would come with FA, but the ... Read more

September 6, 2018September 4, 2018

The Emotional Workout of Physical Therapy

Columns, My Darling Disability - a Column by Kendall Harvey

In Friedreich’s ataxia (FA) care, we don’t really have treatment options. There are clinical trials taking place to work on treatments and hopefully one day, a cure. But until ... Read more

August 30, 2018August 28, 2018

My Big (Literal) Break

Columns, My Darling Disability - a Column by Kendall Harvey

Editor’s note: This post includes images of a bone break that may be disturbing to readers. For some time now, I’ve needed to use a walker (or another mobility ... Read more

April 12, 2018April 11, 2018

Fight or Flight in FA Patients

Columns, My Darling Disability - a Column by Kendall Harvey

Almost everyone can point to moments in their lives dictated by the choice: fight or flight. By definition, the fight-or-flight response is a physiological reaction that occurs in response to a ... Read more

March 22, 2018March 20, 2018

What rideATAXIA Means to Me

Columns, My Darling Disability - a Column by Kendall Harvey

Friedreich’s ataxia (FA) is a big, overwhelming disease. And with it being so rare, it can feel very isolating. My immediate family and I had never even heard of ... Read more

March 8, 2018March 7, 2018

Dealing with Progression

Columns, My Darling Disability - a Column by Kendall Harvey

As my Friedreich’s ataxia symptoms progress, so do my feelings and emotions about this complex disease. When diagnosed, I accepted it pretty quickly. I obviously knew that something was ... Read more

February 8, 2018February 7, 2018

Friedreich’s Ataxia and Marriage: Dealing with the Diagnosis

Columns, My Darling Disability - a Column by Kendall Harvey

When I met my husband Kyle in high school at the age of 16, everything was perfect. We were perfect. We were madly in love with limitless possibilities ahead ... Read more

February 1, 2018February 7, 2019

Pregnancy and Friedreich’s Ataxia

Columns, My Darling Disability - a Column by Kendall Harvey

When diagnosed with Friedreich’s ataxia (FA) at the age of 25, I was devastated. I thought I would have really poor quality of life and that all of the ... Read more

January 25, 2018January 25, 2018

An Introduction to My Darling Disability

Columns, My Darling Disability - a Column by Kendall Harvey

My name is Kendall and I was diagnosed with Friedreich’s ataxia (FA) at the age of 25. I grew up in Katy, Texas, where my childhood was quite happy. I was always ... Read more