When weighed down by the isolation of rare disease, feeling seen and heard can rally a patient’s morale. Leading up to Rare Disease Day Feb. 29, Friedreich’s ataxia (FA) advocates share how awareness has boosted their community’s sense of solidarity and support, and the potential that could be achieved by expanded advocacy efforts.
Rare Disease Day is a call to action for more advocacy and awareness for people affected by rare conditions like FA. But these efforts don’t stop after the 29th. Follow along with us over the next several months for more videos from our FA advocates, as they highlight the issues that are important them.