Base
Name

Henry

Year of Birth

4th August 1997

Gender

Male

Location

Kent

Relationship

Patient

Short Bio

Hello my names Henry, I was diagnosed with Friedrich’s Ataxia last year (2019) I was 21 at the time. We had been waiting for a diagnosis for nearly 6 years after I first started having symptoms ( a wide gate they called it! ) I was very relieved hearing the news but Ofcourse being in the same shoes as me you’d understand  how else I felt about it and sort of still am.

How did you hear about us?

Facebook

How long have you or the person that you are caring for had FA?

5 years

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