• We are Better Together!

    Posted by Katie Griffith on September 29, 2022 at 10:00 am

    I was able to attend my first Philly symposium over the weekend. It is always fun to get to connect with FAmily and meet people in person that you only had known virtually up to that point. 

    I get emotional and overwhelmed with gratitude being in a room full of people who are on the same journey that my family and I are on. When I am at home, I can get bogged down and have the misconception that no one can really understand what we go through on a daily basis.

    At FA events, I am reminded that we are not alone! We are part of a strong support system of other FAmilies, doctors, researchers, and FARA who are all there for us. I am so grateful!

    How do you feel when you attend FA events? If you haven’t attended one yet, would you like to?


    Katie Griffith replied 1 year, 7 months ago 2 Members · 2 Replies
  • 2 Replies
  • Christina Cordaro

    October 2, 2022 at 8:03 am

    I always feel like myself and comfortable in jn my own skin. It’s a great feeling to be in the same room as you who sympathize and understand what you and your caregivers are going through!

    • Katie Griffith

      October 2, 2022 at 9:34 pm

      I agree! It is a beautiful experience.

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