Fighting FA - a Column by Frankie Perazzola

fitness, newly diagnosed, reflecting Frankie lives with Friedreich's ataxia in the city of Los Angeles, California. She writes about her life experiences as an independent 28-year-old woman dealing with rare neuromuscular disease. Frankie focuses on utilizing physical fitness and writing for BioNews as her main coping mechanisms for FA. Through her column, “Fighting FA,” she helps others with internal growth and self-acceptance

Periods of Isolation Allow Me to Thrive

I have been in many social situations where I have blown it. Almost every encounter, actually. I plan to relay a certain message, and my words come out differently than I’d intended. It’s ironic that I majored in communication but lack the skills to express myself.

Rare Disease Day Is Our Chance to Be Heard

I can’t believe it’s February 2020! This is an important month for the rare disease community as we unite and acknowledge one another’s illnesses. Rare Disease Day falls on the last day of February — a rare month with its fewer days. It’s even rarer this time because 2020…

What Kobe Bryant Meant to Me

The world is still in shock over the loss of NBA legend Kobe Bryant. A heaviness lingers over Los Angeles, along with an overwhelming sense of, “What do we do now?” I can’t believe I am writing this column. I won’t talk about Kobe’s accolades or his accomplishments as…

FA Is Taking Away My Ability to Write

Being a writer without the ability to write is a conundrum. I think about it often, especially when I write these columns. I never realized how much I wrote until that ability was slowly taken away. When I was younger, I loved to write. I would use every colored…

Sticking to New Year’s Resolutions

It’s the end of a decade and the beginning of a new year. At this time, many of us make New Year’s resolutions and set our goals for the year ahead. In the past, I have made resolutions that weren’t realistic or achievable; whether it was losing a lot…

I’m Done with Making Myself Feel Bad

It has always been a challenge for me to remain in the present. I frequently reminisce about the past and think about what I should have done. Does your brain remind you of your embarrassing moments when you are about to fall asleep? Same with…

I Went to Italy and Left My Anxiety at Home

My anxiety kicks in when I go out. Between choosing an assistive device, worrying about the accessibility of the venue, and anticipating stares from others, it can be overwhelming. The anxiety is so debilitating at times that I simply choose to stay home. I didn’t…