Fighting FA — Frankie Perazzola

In 2019, the world seems to be more sensitive than ever. We push this narrative on social media to be positive and be ourselves, but then we’re immediately judged when we are. Why would I “dance like no one’s watching” when everyone…

I’ve had the same core group of friends for almost 10 years. We’ve been through many milestones together: First cars, proms, parties, boys, and graduation are some of the experiences we’ve shared. We’ve talked about moving in together. I’ve thought about how…

For those of you who continue reading my columns, thank you for sticking with me. To those of you who are new, welcome to “Fighting FA.” I’m glad to have you here and appreciate the time you…

When I have an initial conversation with someone about my FA diagnosis, the person almost always asks, “Are you in pain?” At first, I didn’t experience any pain whatsoever. Later, I started having restless legs and sporadic, debilitating foot cramps…

When I was in college, my goal was to work in professional sports in marketing or sales. Before I graduated, I worked in ticket sales for the Phoenix Suns basketball team and loved the path my career was taking. I had…

I love to cook. From an early age, I spent time in the kitchen helping or annoying my Nonna. Cooking is therapeutic, and I find enjoyment in the process. It feels good to create something for someone else to enjoy.

Lately, I’ve been finding it difficult to go to my local gym. It’s accessible, so that’s not the problem. The issue is that I’ve stopped enjoying the experience. While I love to exercise and the gym scene in general, navigating…

This week, I wanted to do something a little different. As an FA patient diagnosed only four years ago and with no sign of a heart condition yet, I understand that not too many people can relate to my views…

“Weren’t you just in a wheelchair? Why are you using a walker now? Are you getting better? If you can walk, why do you even have a wheelchair?” I love when genuinely curious people ask me questions. With multiple assistive…

To parents with newly diagnosed children and those who have been in this fight for a while: I salute you. As an adult patient, I am not coming from a place of complete understanding because I do not have…

Almost every day, I have a conversation with myself about the level of my own vulnerability on the internet. Is this comment too much? Should I discuss this topic? Does anyone care? I tend to get lost in an abyss…

By the time you read this column, I hope to be celebrating a win for the Los Angeles Rams over the Dallas Cowboys — my favorite football team will move one step closer to the Super Bowl. Even if they…