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I was grateful to be around my large extended family at our yearly Christmas party. Zeego, unleashed in the huge building where the festivities took place, sniffed beneath the rows of white plastic tables. I had hoped that he would bring some holiday…

The start of a new year always seems to bring new goals and commitments. I’m sure you’ve thought about a thing or two, or have created a long list of resolutions for 2020. Whether we’re talking about specific actions such as exercising three times a week, or vague…

It’s the end of a decade and the beginning of a new year. At this time, many of us make New Year’s resolutions and set our goals for the year ahead. In the past, I have made resolutions that weren’t realistic or achievable; whether it was losing a lot…

Happy New Year! I hope all my readers had a great holiday with their loved ones and are ready for 2020. I had three main goals for 2019 regarding the progression of my Friedreich’s ataxia (FA): accept help when needed; know that my disease is in…

It’s the most wonderful time of the year! Isn’t that what everyone is singing and saying? Christmas music is playing wherever you go, houses are decorated with lights, and the aroma of wood fires fills the cold, winter air. It is also a time of gift-giving, marketing campaigns, parties, and…

I learned a new word this year: “mFARS,” which stands for the modified Friedreich’s Ataxia Rating Scale. The mFARS measures the overall effect of Friedreich’s ataxia (FA), rating abilities such as upper body function, lower body function, speaking, and swallowing.  Unaffected functioning scores a zero on…

I grew up as a picky eater. I was very “basic” in what I liked: graham crackers, mac and cheese, pizza, and popcorn. I didn’t dare venture out to vegetables or anything remotely green. And kettle corn is still nasty. If you were to ask me to share…

Since my diagnosis with Friedreich’s ataxia (FA), I have learned something about myself. I realize that when making plans, I must consider my needs, including accessibility, and I try to help other people understand, too. When I arrange an outing with my family or friends, I easily become anxious and…

“The Zeego Tales” track the wonders of my life with my service dog, Zeego. The day Zeego decided to make a break for it, the autumn air was unseasonably warm. I should have noticed that something strange was about to happen. But in the moment, I expected an…

I’ve been contemplating a metaphor of sorts, inspired by festivities of my family’s holiday traditions. I’m not sure if this is a thought process I’ll cling to very deeply, as it’s still new to me. However, I wanted to write about it now and invite you along on…

According to authors Elisabeth Kübler-Ross and David Kessler, people go through five stages of grief after losing a loved one or experiencing a catastrophic life event. The stages are denial, anger, bargaining, depression, and acceptance. When our daughter was diagnosed with Friedreich’s ataxia (FA), I began a grieving…

Every fall, I find myself being thankful for my family and friends and hoping that they are in good health. I am also grateful for the relationships I have with other Friedreich’s ataxia (FA) patients and their families. These individuals leave me full of gratitude, not only because they teach…