Christina Cordaro
Forum Replies Created
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I know things seem impossible right now, but things will get better. Thinking of you and your family, my friend ❤️
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Thank you so much! I am very pleased with how the event turned out, considering the rainy weekend and still being in a pandemic. Already looking forward to next year!
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Thank you for your service and sharing your story, @vitamyr! It sounds like resilience and determination of your mind has helped you throughout your diagnosis path! You are truly someone to look up to in the FA Community!
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Hi @karina! Just checking in to see how you and your daughters have been feeling? No complications since overcoming your COVID diagnoses, I hope!
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I recently came across this book on Amazon Kindle.
It is written by Kirsty McPake and she guides us through her journey of living with Cerebellar Ataxia. Her goal is to raise awareness of Ataxia and educate those who are unaware of this life altering condition.
https://www.amazon.com/Calamity-Kirsty-My-wobbly-world-ebook/dp/B09S3XHG5S
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Love Amazon! We have Amazon Prime and it definitely makes life easier. They ship to our house a few times a week so I don’t have to leave the house everytime I have to run an errand! And each time proceeds goes to FARA ehich is awesome 😊
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Kudos to Noah’s school for making the right accommodations for him and the future of the disability community!
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Being rare has taught me to appreciate the little things and to celebrate small victories, because they make a big impact!
I am also grateful for the FA Community and how we pick eachother up when we fall..literally and figuratively! Haha
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It can be a scary and unnerving feeling for sure.
In the interim of getting my test results confirming FA, my family and I got involved right away. We reached out to FA Support Groups online and even attended our first rideATAXIA event in our local area (Philly). It was overwhelming, but this way were able to connect and meet families and hear their experiences first hand.
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This is a great reminder that I need to order ours. Thank you!
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I can relate 100%. Life is how we react and we must continue to push through and stay strong!
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I definitely could use the lanyard around my neck to hold my phone because I always find myself dropping my phone out of my control. Thanks for the tip!
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Thank you for sharing your husband’s experiences! I’m glad you found wmany variations of works best for him!
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Having spare/extra batteries is a great idea! I’m always afarid of my power running low or out on me haha!
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I like your idea of saying something positive and not focusing on our limitations. There is still so mchh we can do, even it has to be done a different way.
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I agree that the waiting game may endless. However, I am still hopeful because a there is a company out there that is working and striving for the same end goal! Everything these days is up in the air, but i am thankful something is at least in the works.
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I used to love watching 7th Heaven growing up! I should start up again 😊
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Aw thank you! 😊
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I am happy to hear that you are keeping an optimistic attitude throughout it all and that no physical complications have occurred!
I am sorry to hear that it has logistically been an issue. I know it is easier said than done, but try to remain positive. We wouldn’t be dealt with the challenges that come with living with a rare disease if we werent able to handle it! Keep on the good fight! 😊
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Is it compatible for all models?
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Hopefully it is shipped and delivered sooner!
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It never gets old! I always have the same reaction of motivation and hope each time I watch it!
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It really does!
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That’s awesome, Kelly! I hope it helps and I cant wait to hear your experiences!