ChristinaC
Forum Replies Created
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Thank you for sharing, Rusty! I’m glad it’s helping your daughter and I’m sure it will help others too!
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I like the electric automotive blanket idea for myself and am going to try it!
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Hi Niamh!
No need to apologize that’s what the forums are here for!
I’m sorry you are feeling this way and that feel lonely and isolated. Do you have any close friends or family members to talk to? Or do you have any close friends with FA to confide into? It helps me have a close friend with FA who understands exactly how we are feeling and are going through.
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Hi Clester!
I’m glad you found a specialist who is understanding and informed. It’s important not to settle when dealing with health.
-Christina
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Dave, I am so glad you found your core group of people!
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I use a heating pad too on my legs and feet, and it does wonders!
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I’ve never heard of wild lettuce, so I am going to look into it! And definitely the benefits of dandelion tea, since I am a tea drinker. Thank you!
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Thank you, Rob for sharing your experiences! I wanted to check in and see how you and your wife are doing mentally, since caregiving is a lot!
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Hi Clester,
I am glad your friend helps so you get time for yourself!
I am sure it isn’t easy being the primary caregiver, but you deserve all the praise and more! I am sure your wife is very grateful for you and having you in her life.
-Christina
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Thank you for sharing your experienes and helpful information!
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I need to eat smaller poritons, but I feel like I am always hungry because we burn off so much energy!
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Hi Clester, I am sorry to hear about all of your wife’s hardships with doctors, nurses and hospitals. She is luckt to have a supportive husband like you by her side!
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Hi Clester! I am sorry the hearing aids are not helping. Does your wife’s neurologist reccomend anything else?
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Hi Clester! I am glad your wife found alternatives that work for her! I am going to look into B1. Thanks for the information!
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Hi Meg! Your weight loss journey is amazing! What modifcations have you been making? I really hope your bloodwork comes back OK!
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Same! I feel much healthier because I exercise more and see a personal trainer at a gym, so I don’t get it. I am really hoping a modified diet helps.
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Hi Clester!
Heat and humidity affects my feet too, so I am going to try cooling socks!
I am glad you andf your wife found mutiple remedies for her!
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Hi Clester,
I am sorry you and your wife didn’t feel the love and support ther you both deserve. It sounds like you two have a strong bond and connection though, and can get through anything together.! You’re very lucky to have one another.
My husband and I both have rare diseases, so we have a better understanding of what we each go through and how to be there for another.
It’s rare to find our love stories!
-Christina
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Hi Clester!
It sounds like you both have a smart dog on your hands. It’s great that she helps with the physical and emotional aspects for both you and your wife! I also love that she keeps you both laughing everyday. Laughter truly is the best medicine!
-Christina
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Same, I don’t drink that much either. It triggers all my FA symptoms (speech, balance and fatigue).
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Don’t be sorry and got it!
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Has the the klonopin beeinh helping?
I currently do not take trzodone. I have only heard of other FA members of the community take it.
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Clester,
I neverr heard of “wild lettuce” and its benefits, so thank you for sharing knowledge about it. I also agree on reducing the drugs/medicine is better. I am glad you and your wife found a remedy that helps her!
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Nope! It made me feel much better!