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    • #18010
      Katie Griffith
      Keymaster

      Last week, I was able to participate in a Kickstarter for a new book that is coming out called “From Diagnosis to Destiny” by Jacob Thompson aka TEN20. Jacob has FA, and I’m interested in learning more about him and his perspective. Have you read any books written by someone with FA or one of their caregivers? If so, please share in the comments!

    • #18018
      Danita
      Participant

      I have read:
      • Living the Decision: A Pocket Guide to Cramming 72 years of living into 27.</span></h1>
      • Shifting into High Gear

       

       

      • This reply was modified 1 week, 3 days ago by Danita.
    • #18019
      Nelda Van Schoick
      Participant

      Hi all–I do not have a particular book about FA but I recently bought one about a young man with SMA–spinal muscular atrophy. It is a fiction book with a mystery involved. What it so universal though is how the main character describes his disability and how it affects all aspects of his life. I think a lot of those familiar with FA will find it spot on in describing how FA affects them.

      The book was written by Will Leitch who is mostly a sports journalist. He lives here in Athens, GA and some of his family’s best friends adopted a little boy who ended up having SMA.

       

      Good book!

      Nelda

       

    • #18023
      Katie Griffith
      Keymaster

      Thank you for the recommendations, Danita! I read Kyle Bryant’s book and loved it. I’ll have to check out “Living the Decision!”

      That sounds very interesting, Nelda! I’m sure it will still resonate. Thanks for the recommendation. Is it titled “How Lucky?”

    • #18024

      I’ve read Shifting Into High Gear by Kyle Bryant!

      There’s also Stare At Me by FA Patient, Joey Mullaney that just came out!

    • #18025
      Katie Griffith
      Keymaster

      Thanks for sharing, Christina! I’ll have to order that one as well.

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