Viewing 6 reply threads
  • Author
    • #18010
      Katie Griffith

      Last week, I was able to participate in a Kickstarter for a new book that is coming out called “From Diagnosis to Destiny” by Jacob Thompson aka TEN20. Jacob has FA, and I’m interested in learning more about him and his perspective. Have you read any books written by someone with FA or one of their caregivers? If so, please share in the comments!

    • #18018

      I have read:
      • Living the Decision: A Pocket Guide to Cramming 72 years of living into 27.</span></h1>
      • Shifting into High Gear



      • This reply was modified 1 year ago by Danita.
    • #18019
      Nelda Van Schoick

      Hi all–I do not have a particular book about FA but I recently bought one about a young man with SMA–spinal muscular atrophy. It is a fiction book with a mystery involved. What it so universal though is how the main character describes his disability and how it affects all aspects of his life. I think a lot of those familiar with FA will find it spot on in describing how FA affects them.

      The book was written by Will Leitch who is mostly a sports journalist. He lives here in Athens, GA and some of his family’s best friends adopted a little boy who ended up having SMA.


      Good book!



    • #18023
      Katie Griffith

      Thank you for the recommendations, Danita! I read Kyle Bryant’s book and loved it. I’ll have to check out “Living the Decision!”

      That sounds very interesting, Nelda! I’m sure it will still resonate. Thanks for the recommendation. Is it titled “How Lucky?”

      • #18050
        Katie Griffith

        I finished “How Lucky” today and really enjoyed it!

    • #18024

      I’ve read Shifting Into High Gear by Kyle Bryant!

      There’s also Stare At Me by FA Patient, Joey Mullaney that just came out!

    • #18025
      Katie Griffith

      Thanks for sharing, Christina! I’ll have to order that one as well.

    • #18605

      I recently came across this book on Amazon Kindle.

      It is written by Kirsty McPake and she guides us through her journey of living with Cerebellar Ataxia. Her goal is to raise awareness of Ataxia and educate those who are unaware of this life altering condition.

      • #18607
        Katie Griffith

        Thanks for sharing, Christina! Another one to add to the list 😊

Viewing 6 reply threads
  • You must be logged in to reply to this topic.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen


We're not around right now. But you can send us an email and we'll get back to you, asap.


Log in with your credentials


Forgot your details?

Create Account