Forum Replies Created

  • Ant Pinkie-Brown

    Member
    August 5, 2019 at 2:24 pm in reply to: FA and Bladder-Control

    Drink less? Prayer? Seriously, nothing I know of helps. Just one of the many problems to put up with!

  • Ant Pinkie-Brown

    Member
    July 11, 2019 at 9:37 am in reply to: Extreme Weather Conditions

    It’s obviously Gods way of telling humanity not to populate inhospitable environments🤣
    Live in England-we get two days of the same sheathed and it’s either heatwave , floods, a bit blowy out, or snow that cancels work, schools and trains!

  • Ant Pinkie-Brown

    Member
    July 10, 2019 at 11:21 am in reply to: Tips for Getting Dressed

    Don’t hurry-whatever you do, Don’t get dressed in the chair, don’t be proud and not ask for help, be prepared to struggle (it’s not really a big deal)

  • Ant Pinkie-Brown

    Member
    July 10, 2019 at 10:31 am in reply to: Wireless vs wired head phones

    I have over the ear Bose ones. They’re about $160, but so comfy and look quite trendy, sound good too!

  • Ant Pinkie-Brown

    Member
    July 3, 2019 at 8:47 pm in reply to: The Mystery of Sweat

    I don’t sweat working out, but do when I fall over and have to crawl to the other room. It’s annoying because I feel like I’m not having a proper workout. But my co-ordination stops me going any quicker. Maybe I need to fall over more often!!

  • Ant Pinkie-Brown

    Member
    June 21, 2019 at 1:51 pm in reply to: Buffet-ers Sounds Like Buff FAers

    It’s a lottery! I usually say no egg and we’re golden. I do loose sleep over my buffet game, maybe I should be more demonstrative!

  • Ant Pinkie-Brown

    Member
    June 13, 2019 at 1:20 pm in reply to: Needing structure in life

    I don’t know where your reply went, I’m going to look mad replying to myself!
    What is it they say-you need to know the rules in order to break them. That and kill all your darlings are my two favourite writing sayings.

  • Ant Pinkie-Brown

    Member
    June 13, 2019 at 11:06 am in reply to: Needing structure in life

    In general I’m structured too, but structure is only good up to a point. Artistic inspiration comes from an entirely different place.

  • Ant Pinkie-Brown

    Member
    June 13, 2019 at 11:01 am in reply to: Is Dark Humor Common With FA?

    I call it gallows humour. Life in general is tough, why not alleviate things a bit by laughing at adversity?
    Apparently, lots of folk with Fa find inappropriate humour funny. Is it a reflex we have?

  • Ant Pinkie-Brown

    Member
    June 4, 2019 at 6:23 pm in reply to: FAers Food Choices

    I try and avoid having to cut my food, who needs the stress? I don’t mind people cutting my meat for me-there’s a lot worse about FA that you need to worry about.

  • Ant Pinkie-Brown

    Member
    June 3, 2019 at 1:53 pm in reply to: Round Round Get Around, How Do You Get Around?

    I mean days out really. I went into the city for coffee with friends in the manual, it took longer pushing around but exercise is good I guess!

  • Ant Pinkie-Brown

    Member
    June 3, 2019 at 1:00 pm in reply to: Round Round Get Around, How Do You Get Around?

    I alternate what I use. Keeps me strong (I hope). Any trips out is the electric all the way, but at home, exercising is virtually impossible with a powered chair. It’s strange, I feel people are happier if they see me electric, they don’t have to help me (not that I accept) and they can make tiresome jokes about my driving!