Viewing 5 reply threads
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    • #14371
      Matt Lafleur
      Keymaster

      I’ll get vulnerable here for a second. This isn’t very fun to talk about. Having Friedreich’s ataxia, bladder control isn’t the easiest thing to deal with. Does anybody have any tips, medicines, etc. that really help them out? Any tips would be appreciated.

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

    • #14394
      Ant Pinkie-Brown
      Participant

      Drink less? Prayer? Seriously, nothing I know of helps. Just one of the many problems to put up with!

    • #14410
      Becca
      Participant

      My mom has FA and she uses oxybutynin (Ditropan XL) or tolterodine (Detrol) to manage this. Hope this helps!!

      • #14414
        Matt Lafleur
        Keymaster

        These are awesome tips. Thank you so much!

    • #14435
      Jonathan Dews
      Participant

      Hi Matthew. I have had this problem for a while and I was advised by the Ataxia clinic in London, England to make an appointment to see a Urologist. This turned out to be really useful. Before seeing the Urologist I had been taking oxybutinin, which I notice somebody has mentioned in a reply to you. Personally I found these tablets made my mouth really dry and they weren’t that effective anyway. The Urologist prescribed mirabegron and tamulosin. You take the mirabegron during the day and the tamulosin before you go to bed. Personally I find these drugs work much better and they don’t make your mouth as dry.I have a friend with ataxia and he uses the same drugs.
      Hope this helps
      Best wishes
      Jonathan

    • #14447
      Matt Lafleur
      Keymaster

      Thank you so much Jonathan. This is very helpful

    • #14546
      Clester
      Participant

      May sound odd but my wife used to have that problem until she was diagnosed with congestive heart failure, which is common for people with or without FA. She was prescribed ferosimide (hope I spelled that right), it’s a water pill/lasics,(in the morning) and it helps get rid of fluid build up. And that helped her tremendously. She almost never has “accidents” now. And since the Dr tried to kill her which ended up killing her large intestine(she has an ileostomy), because of that she has to make sure she drinks a lot more than she used to. That made her have accidents a lot but since the water pill she doesn’t hardly ever.

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