1. Sandra Courbier, Eurordis
    June 19, 2019 News by Margarida Azevedo, MSc

    ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
  2. NORD
    May 17, 2018 News by Larry Luxner

    ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35
  3. MOXIe trial interview
    October 18, 2019 News by Ana Pena, PhD

    ‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
  4. senataxin protein in FA
    November 1, 2016 News by Özge Özkaya, PhD

    ‘Genome Guardian’ May Prevent Development of Friedreich’s Ataxia, Other Neurological Disorders
  5. September 18, 2019 News by Alice Melão

    “”Mechanism of activation of the human cysteine desulfurase complex by frataxin””

  1. advocacy
    September 13, 2019 A Practical Guide to Life with FA - a Column by Christina Cordaro by Christina Cordaro

    3 Strategies for Enjoying Alcoholic Beverages with FA Challenges in Mind
  2. advocacy
    October 4, 2019 A Practical Guide to Life with FA - a Column by Christina Cordaro by Christina Cordaro

    3 Reminders for Living with an Invisible Disease
  3. advocacy
    July 19, 2019 A Practical Guide to Life with FA - a Column by Christina Cordaro by Christina Cordaro

    4 Physical Therapy Strategies That Help Me
  4. advocacy
    July 26, 2019 A Practical Guide to Life with FA - a Column by Christina Cordaro by Christina Cordaro

    4 Solutions to Beat the Heat with FA Symptoms in Mind
  5. swim, hopeless, progress, identity, physical therapy, thank you, cajun food
    December 18, 2019 Columns by Matt Lafleur

    2019: A Year of Little Victories