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    • Defining Yourself — Jean Walsh
    • My Darling Disability
      — Kendall Harvey
    • Little Victories — Matthew Lafleur
    More perspectives
    • Recalibrating — Elizabeth Hamilton
    • No Good Excuse — Sean Baumstark
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    • An Unexpected Journey — David Riley
    • Practical Guide to Life with FA — Christina Cordaro
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    • Rare Moves
    NAF Conference

  1. Sandra Courbier, Eurordis Discussion
    News

    ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
  2. NORD Discussion
    News

    ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35
  3. MOXIe trial interview Discussion
    News

    ‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
  4. senataxin protein in FA Discussion
    News

    ‘Genome Guardian’ May Prevent Development of Friedreich’s Ataxia, Other Neurological Disorders
  5. News

    “”Mechanism of activation of the human cysteine desulfurase complex by frataxin””

  1. advocacy Discussion
    Columns

    3 Strategies for Enjoying Alcoholic Beverages with FA Challenges in Mind
  2. advocacy Discussion
    Columns

    3 Reminders for Living with an Invisible Disease
  3. advocacy Discussion
    Columns

    4 Physical Therapy Strategies That Help Me
  4. advocacy Discussion
    Columns

    4 Solutions to Beat the Heat with FA Symptoms in Mind
  5. swim, hopeless, progress, identity, physical therapy, thank you, cajun food Discussion
    Columns

    2019: A Year of Little Victories

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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