Following my Friedreich’s ataxia diagnosis in June 2015, one of the first things the doctors told me was…
Articles by Frankie Perazzola
Part of the advocacy realm that I truly enjoy is the opportunity to travel to new places and…
Friedreich’s ataxia is physically challenging, but the mental aspect is often extremely debilitating as well. People are either…
If you are a Friedreich’s ataxia patient, it’s likely that you’ve felt like a burden on your loved ones at…
The last week of February was extremely busy here in Southern California for the FA and rare disease…
On February 26, 2018, the movie The Ataxian was finally released to the public. If you’re not familiar with the…
Until I recently had a discussion with a friend, I hadn’t realized how important the city of Los…
Meet John Cernosek from Maryland! John lives in Silver Spring with his beautiful girlfriend, who also happens to…
Its been a while since I have written for my column, and I apologize for the inconsistency to…
The Friedreich’s Ataxia Patient Spotlight is another method of raising awareness for Friedreich’s Ataxia. With an understanding of a rare…