Native of Los Angeles, California figuring out life with an incurable, life-shortening, progressive, neuromuscular disease Friedreichs Ataxia. Disabled, Arizona State Grad looking to change the world while adapting to a whole new world and sharing my journey in words along the way.
Thanks to Friedreich’s ataxia (FA), I have experienced the stress and turmoil of trying to hang on to strained friendships. After my diagnosis, friendships and romantic relationships were put ... Read more
Mental health is a significant yet overlooked aspect of dealing with a chronic illness. While it may be taken into consideration, it’s not often treated with sufficient seriousness. Continual ... Read more
Friedreich’s ataxia is physically challenging, but the mental aspect is often extremely debilitating as well. People are either afraid or unwilling to discuss their true emotions while dealing with ... Read more
The last week of February was extremely busy here in Southern California for the FA and rare disease community. On Feb. 23, the Friedreich’s Ataxia Research Alliance/University of California, ... Read more
Until I recently had a discussion with a friend, I hadn’t realized how important the city of Los Angeles was for my outlook on having Friedreich’s ataxia. I realize ... Read more
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