Native of Los Angeles, California figuring out life with an incurable, life-shortening, progressive, neuromuscular disease Friedreichs Ataxia. Disabled, Arizona State Grad looking to change the world while adapting to a whole new world and sharing my journey in words along the way.
Friedreich’s ataxia is physically challenging, but the mental aspect is often extremely debilitating as well. People are either afraid or unwilling to discuss their true emotions while dealing with ... Read more
The last week of February was extremely busy here in Southern California for the FA and rare disease community. On Feb. 23, the Friedreich’s Ataxia Research Alliance/University of California, ... Read more
As an FA patient, it can be difficult to effectively communicate your exact needs, hesitations or fears to those whose help you need the most. It can seem nearly ... Read more
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