Friedreich’s Ataxia

Recent Posts

• I No Longer Let Fear of the Future Control My Life With FA
• Rare Disease Diversity Coalition Awards $600K to Combat Disparities
• Grieving the Loss of Abilities as My FA Progresses
• Boldly Moving Forward, Even With Friedreich’s Ataxia
• ‘Rare’ Documentary in Kickstarter Campaign to Raise $45K by Oct. 28
• Coyotes, Roadrunners, and a Cure for My Rare Disease
• Plans Progress for Approval of Omaveloxolone
• Friedreich’s Ataxia Forces Me to Be a Spectator Mom
• New Data-sharing Program Aims to Speed Innovation in Rare Diseases
• The Way I Manage My Symptoms Offers Insight Into Personal Growth