[jacko Cardozo]

I didn’t want to get in a wheelchair when everybody encouraged me too. I Was angrier more stressed and falling over all the time.
My brother is 8 years younger than me, very chilled and hopped in a wheelchair as soon as it was recommended.
I took inspiration and got in one a few months later. me, my brother n sister all have ataxia, all use wheelchairs.
As soon as i got in a wheelchair i realised how much of a relief it is to go where you want without stress, strain and effort.

The technology is amazing you can get many different types of wheelchair, fast, lightweight, electric or collapsable. I have an attachment that i clip on when i want to go out on the street, 30klmph. Gets me to by destination quicker than a car through traffic in a busy city.
Everybody does it differently, everybody’s ataxia affects them differently, everyone has different requirements, yours will be specific and personalised.
It is amazing how socially accepted it is to be in a wheelchair too, people get freaked out and don’t know what to do if you wobble drunkenly down the street, but in a wheelchair they can be even patronisingly helpful.

It is true my legs have atrophied more from lack of use. But that is more my fault for spending too much time in my chair (it is just so much easier and i have things to do, places to be ; )

If you use a wheelchair you could actually help slow the progression, your time, energy and stress will be freed up so you can focus on performing the right kind of directed exorcize and stretches.

Wouldn’t you prefer to glide along elegantly and effortlessly than struggling around?

You can learn some funky wheelchair dance moves, play sports, and so much more. Your life could be revolutionised!

Jacko

[jacko Cardozo]

I travel solo in my wheelchair every winter (from the uk) i find the heat much more beneficial, pleasant and time saving plus, sun = vit d = happiness : ), swimming = aqua-therapy, good food, cheap living and indepence.

[jacko Cardozo]

@christina-logan I get it from a nutritionalist but i think you can buy it online.

[jacko Cardozo]

I have just started drinking this “Greek mountain tea” after being suggested it by a naturopothist, i did some intense research of my own (as i cant help being a bit of a cynic about most heath related suggestions)

I am actually really exited about this tea, it has a few specific benefits for Ataxia such as nerve damage repair and a high level of antioxidants.
It also has loads of other great benefits (link attached)

http://www.chaniapost.eu/2017/08/29/the-health-benefits-of-greek-mountain-tea/

it is a great replacement for caffeinated drinks as the make you need to pee more anyway (so boring if you have ataxia)

Hope this is useful!

Jacko

[jacko Cardozo]

you can buy little foot warmers on ebay, stick em to socks inside shoes, also worth investing in some proper wool lined boots or slippers

[jacko Cardozo]

a smart home

I use, “philips hue” light bulbs, you could also set up the house for other helpful, smart phone enabled things, like electric curtains, bluetooth power sockets and such.
This means the affected person doesn’t have to physically turn the light switches or close/open the curtains/ door locks/ thermostat/ music/ kettle/ etc…
Jacko