Bionews Services is launching a new project on Jan. 22: the Friedreich’s Ataxia News Forums. This will be a place for all of those affected with FA — patients, caregivers, family members, close friends, and significant others — to sign up, post, and comment on messages about…
Columns
By the time you read this column, I hope to be celebrating a win for the Los Angeles Rams over the Dallas Cowboys — my favorite football team will move one step closer to the Super Bowl. Even if they lose the game, the team has had an…
Everyone has a morning routine, a plan that sets the mood for the day. Most people become so used to the regimen that they carry out tasks on autopilot. However, when living with a rare, neuromuscular disorder such as Friedreich’s ataxia, the routine can become irregular and require additional concentration,…
Spoiler alert: In this column, I’ll review the popular Netflix movie “Bird Box.” I explore the movie’s ending. If you like suspenseful sci-fi movies, I recommend watching it first, then returning to this column. Be aware that the movie plot includes mass suicides. *** Across…
Let the New Year’s resolutions and “fresh start” cliches pour in to overwhelm timelines and news feeds. Ringing in the new year has always been a favorite time of mine — the energy shifts. Many people, including me, desire to change and become “better.” When thinking about resolutions, I…
New Year, New Beginnings
An approaching new year means multiple things to different people. A new year can mean starting over or aspiring to new goals or resolutions. It is an appropriate time to be happy and to seek a fresh start to be the best version of yourself. Regarding life with Friedreich’s ataxia,…
“What’s your resolution?” This time of year, redefinition is almost a buzzword. Resolutions and goals are a hailstorm assault on social media. As the calendars mark another complete orbit around the sun, the timing seems perfect to redefine yourself, to create a better…
The Calm Before the Storm
Let’s talk about what to do during the “calm before the storm.” And no, I am not talking about going to the grocery store during the holidays to fight through fanatical crowds for butter, milk, and eggs. I am talking about how to take advantage of calm days to prepare…
Writing this column has really been a joy for me. A significant source of worry with a progressive disorder like Friedreich’s ataxia (FA) is the difficulty of finding a job. As my physical abilities lessen, my job prospects shrink. It would seem like…
With more than 7,000 known rare diseases in the world, it’s impossible to have all humans acknowledge and learn about every single one. No matter how life-threatening, debilitating, or serious a disease is, the hard truth is that if it doesn’t affect a large group of…
Editor’s note: This column discusses what has worked for Christina Logan, but others may not have the same results. Second in a two-part series. In last week’s column, I discussed how fatigue is a Friedreich’s ataxia (FA) symptom that has gotten the best of me. Every day, I internally…
Surviving the In-between Moments
On any typical day at my middle school, the closer you were to the bench, the higher your social status. It was a cheaply made concrete bench, painted over at least three times, judging by the multicolored paint chips littering its surroundings. Nothing separated this bench from…
Recent Posts
- AAC 2026: Newly diagnosed and prepping for a neurologist visit
- FA took away my passion, but I’m trying to bloom where I’m planted
- New stem cell lines may help in developing therapies for rare FA cases
- What to do when avoiding hard conversations is impossible
- Rare at Sea: Cruise offers connection, support for those with rare diseases