Columns

As a mom, I am obviously around kids all the time. But not just my own. I am around kids when I take my children to school, T-ball, church, play dates, restaurants with playgrounds, etc. I encounter countless kids each week. As an FA patient dependent on a mobility…

On the long drive home from rideATAXIA Dallas, I asked the driver, my buddy Ryan, for his overall takeaway from our weekend trip. “I feel like I understand you and your life a little better,” he managed to say before we drove into a rainstorm and…

I want to give credit to this column, and the writing habit I have developed because of it, for some of the recent improvements in my personal performance. Writing doesn’t often come naturally to me, so I was hesitant at first about committing to a…

I love to cook. From an early age, I spent time in the kitchen helping or annoying my Nonna. Cooking is therapeutic, and I find enjoyment in the process. It feels good to create something for someone else to enjoy. Cooking requires patience, fun, and love, and it…

When living with Friedreich’s ataxia, one learns to accept “what is” and to celebrate small victories. For example, I have recently discovered that cleaning and tidying up around my one-bedroom apartment in Philadelphia is a very rewarding victory. I express this because though it may seem like a…

They couldn’t understand why I wouldn’t try, and my absolute refusal surprised me, too. Downtown Los Angeles in 2005 was unfamiliar to me, in a good way. It was a combination of sunshine and sea breeze, and the heat was crisp and enjoyable, unlike the sweaty…

Recently, a topic of conversation on the podcast I co-host, “Two Disabled Dudes,” revolved around this column and the idea of excuses versus reasons. My co-host, Kyle Bryant, and I discussed the basic philosophy and tried to lay out an elementary explanation of the…

Lately, I’ve been finding it difficult to go to my local gym. It’s accessible, so that’s not the problem. The issue is that I’ve stopped enjoying the experience. While I love to exercise and the gym scene in general, navigating this fitness club, one of a large chain,…

I had my annual Friedreich’s ataxia checkup last week at Children’s Hospital of Philadelphia, which hosts a Friedreich’s Ataxia Center of Excellence for patients and their families. I’m very fortunate to have this facility and my doctor right in my “backyard” of the city that I call…

I first encountered a service dog accompanying a person with Friedreich’s ataxia (FA) three years ago. I had met my friend and fellow FARA ambassador Andrea and she had her beautiful black Lab, Ramada, with her. I could tell right away that Ramada was more…

Is there ever a “right” time? I’d argue that this idea is mentally comforting, but the “right time” doesn’t exist. You can wait all you want, but that’s where regret begins to take root in your life and your lack of action begins to…

When my sister, brother, and I were younger, our parents would take us on trips to various museums. These memorable times included day trips to the art or science museums in our city of Philadelphia. On the weekend we would travel two hours to New York to see…