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An open letter to parents whose children have FA

As our parents know, those of us with Friedreich’s ataxia (FA) persevere through all of the challenges life throws our way — and there are many. I’m proud to belong to a group of such scrappy and fierce people, even though none of us would’ve chosen to live this…

Shoe shopping with FA is tough, but worth the effort

Recently I had to purchase shoes. I’ve always loved shoes and clothing, and I feel creative when I select an outfit that reflects who I am. Also, I simply feel better when wearing an outfit that feels like me. Shoes are a big part of that. I remember breaking…