Columns

The innocence of children is a wondrous thing

One of my favorite aspects of motherhood is getting a glimpse of the way young children experience the world around them by hearing their observations and fielding their questions. As the mom of two active, social, and athletic kids — a 5-year-old daughter, Collins, and an 8-year-old…

Adjusting to new mobility aids as my FA symptoms progress

When I was a 25-year-old newlywed thinking about starting a family, the words “you have Friedreich’s ataxia” seemed like the worst life sentence imaginable, which would be followed by a painful and premature end. I was devastated. Now that I’ve lived with a Friedreich’s ataxia (FA) diagnosis for…