Columns

FA Progression No Longer Has Total Control Over My Life

It’s no secret that I struggle both mentally and physically with the relentlessly progressive nature of Friedreich’s ataxia (FA). Just when I think I’ve got the hang of coping with advancing symptoms and the adaptations they require, new challenges enter my path. I feel like I’m constantly putting…

I’m Trading My Disabled ‘Scarlet Letter’ for Joy

Many have read Nathaniel Hawthorne’s novel “The Scarlet Letter,” but in case you haven’t, the main character, Hester, is forced to live her life as an outcast with the scarlet letter “A,” for “adulterer,” on her chest to atone for her sin. The novel follows her life as an ostracized…

Goodbyes Are Never Easy, but They Are Part of Life

It’s the time of year when we begin to catch little glimpses of changes coming — a breeze blowing unexpectedly, cool morning air, leaves starting to fall. I’ve learned after my 43 years on this earth that seasons change. Even though the summer days are still long and hot, they…

Finding Reason When Living With a Rare Disease

“So I guess the old saying ‘everything happens for a reason’ is true,” my friend and supervisor Brittany Foster said, ending her presentation. I’m still thinking about her words a month later, as I noted in my last column. We were in the middle of a “culture meeting” with…