Somewhere, it’s like a whistle has been blown urging me to get off of the sidelines and into the game.
Matt Lafleur
Matthew's life doesn’t look like what he imagined when he was an active Cajun boy. Once diagnosed at age 11 with Friedreich’s ataxia, he threw himself into books, writing, and studies, achieving a bachelor’s degree in English and a master’s degree in mental health counseling. Writing a column at Friedreich’s Ataxia News and serving as the associate director of columns for its parent company BioNews is a perfect combination of his two degrees. He notes life’s small, often overlooked successes in his column. In progressive disability, Matt tries to notice his little victories, hoping that others notice their own ... or something like that.
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Articles by Matt Lafleur
First of two parts. I answered my phone on speaker and set it on my table. I was worried that…
As the end of February approaches, Rare Disease Day, held annually on the last day of the month, is…
I Can Still Walk in My Dreams
Often I’d rather dream than face reality. I reflect on this most mornings, when the sun rises enough to turn…
A few mornings ago, I groggily looked up and saw my reflection in the mirror. Because my vanity is wheelchair-accessible,…
Becoming the Miracle We Seek
“You’re cured, Matt! You’re cured!” yelled some friends, their shouts echoing in the ballroom of my college’s student…
For some reason, the huge tome of American literature that served as my textbook for high school English always…
The long drive back home was uneventful as the sky shifted from a clear blue to an ominous collection of…
“This isn’t a good start to the trip,” I thought while trying not to topple to the floor. I’d missed…
Sometimes holding on to hope looks a lot like desperation. I’ve been dealing with the unstoppable progression of my…