Hardships are a part of the human experience. Everyone has gone through or is going through something they’d rather not face. We don’t get to choose the struggles we encounter; we can only choose how we respond. For many people, that involves sharing — talking to friends and loved ones…
My Darling Disability
— Kendall Harvey
Kendall Harvey is a wife and mother of two in Austin, Texas. She has been navigating life with Friedreich’s ataxia (FA) since her diagnosis in 2013 at the age of 25. She worked in marketing before “retiring” to be a stay-at-home-mom. She is an optimistic warrior fighting for a better future free of FA. Until that day comes, she aspires to inspire others with her column by detailing personal life lessons about grit and grace. Kendall shares a message of hope despite disability.
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I don’t often write about my life before Friedreich’s ataxia (FA) symptoms severely altered me at age 25. I don’t think that pining for the past is helpful when I wish to stay positive in the present and hopeful for the future. However, one of my old passions is…
With Thanksgiving approaching, my family and I have been talking about what we’re thankful for. My 5-year-old daughter, Collins, is thankful for adorable things like her cat named Banana, our swimming pool, her school playground, horses, and of course, her brother, Mommy, and Daddy. My 8-year-old son, Brooks, is thankful…
What do election years and Friedreich’s ataxia (FA) have in common? A lot more than you’d think. Let me explain. As I’m writing this column, it’s midterms election week, so it’s very front of mind, just as FA has been for me for the last nine years. This got…
Battling a degenerative disease, especially one so rare that most people haven’t heard of it, can be a lonely journey. Even our closest friends and family members, who know us better than anyone, can only imagine and sympathize, as they don’t face the same physical struggles. Unless you have…
The effects of Friedreich’s ataxia (FA) are vicious, relentless, widespread, and undeniable. FA uses my own body to slowly defeat me physically. The disease has taken away so much from me and given me a lot of hardship. I guess you could say that by many definitions, I am…
This too shall pass? The human experience is such a beautifully complicated journey. We all learn, grow, develop opinions, follow tendencies, change, adapt, and change some more. One common catalyst that shapes who we are is adversity. Everyone experiences adversity in one way, shape, or form, and that forever changes…
In August 2013, months of questions, fears, and wild speculation came to a shocking conclusion. The changes to my body and abilities were explained: I had Friedreich’s ataxia (FA). The days, weeks, and months after receiving that diagnosis were some of the strangest of my life. As I…
Most of us have probably heard inspiring stories about “mom strength,” “superhuman strength,” or “hero strength.” This phenomenon, known as hysterical strength, refers to extraordinary displays of human strength, typically prompted by a life-threatening situation. As someone living with a degenerative condition called Friedreich’s ataxia (FA), I’ve spent…
I’ve always been an emotional person. I feel everything with great depth and have a long memory, and while I love to celebrate the good in life, I tend to be consumed by the bad. I often take things personally and overthink them. At times, my emotions will seem to…
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