Forum Replies Created

  • Mary kelly

    Member
    January 28, 2020 at 2:44 pm in reply to: Etravirine…

    Hi Lichi
    Download Telegram App to participate in ongoing chats …I have just joined recently myself
    https://t.me/joinchat/J682xhFAMTiMpCo3Of5PXQ

  • Mary kelly

    Member
    January 28, 2020 at 2:44 pm in reply to: Etravirine…
  • Mary kelly

    Member
    September 21, 2019 at 9:52 am in reply to: Etravirine…

    Hi can anyone give an update on how progressing with this drug

  • Mary kelly

    Member
    July 16, 2019 at 2:07 pm in reply to: Etravirine…

    Hi everyone..any more updates..I have appointment on 26 July with my sons doctor..really hoping to persuade them to prescribe

  • Mary kelly

    Member
    June 3, 2019 at 10:38 am in reply to: Etravirine…

    Hi everyone..can anybody tell me if any brand you are using ..lactose free.
    As my son is allergic to it
    Please let me know asap…as I am planning on going to Turkey to purchase
    Thank you
    Mary

  • Mary kelly

    Member
    May 1, 2019 at 7:06 am in reply to: Etravirine…

    Hi everyone
    Can you tell me what blood tests need to be done?My 16 year old son very anxious to try this so far doctor hasn’t agreed
    Has anyone got an address etc in Turkey so I can order .
    Thank you
    Mary

  • Mary kelly

    Member
    April 2, 2019 at 12:54 pm in reply to: Therapeutic Prospects for Friedreich's Ataxia

    Thank you Shandra
    Can you explain in layman’s terms please…is generally therapy available or how soon do you think

  • Mary kelly

    Member
    April 2, 2019 at 11:18 am in reply to: Etravirine…

    Hi I’m new…I’m so excited reading the feedback
    My 15 year old son has friedrichs,I’m going to speak to his doctors about the possibility of prescribing this for him
    I found this forum by accident searching about etravirine