Jon Jacobsen
Forum Replies Created
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First symptoms 50 years ago, I am also late stage. Add diabetus it seems end is near.
Iam 21 days on. Only ‘itchy’ only side effect.
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I have Medicare with supplemental insurance through Blue Cross. they approved the prescription but the copay was still really high. I applied for help with the copay from Reata and they covered it 100%. I started taking the medication July 9th three 50 mg pills once a day. as of this writing, I have been on them 16 days.
the program pays the copay if insurance is okay and you have to be denied because of income too much for security help. they said qualification was $150,000 or less for a joint return.
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I haven’t noticed any side effects. I have been taking this medication for almost 3 years. several times I have gone to bed and forgot to take this pill, after couple hours, my wife says to me I think you forgot your pill because my legs are all over the place. it doesn’t have any ill effect on me so I continue to take them. my son who doesn’t have fa has restless legs. I gave him a couple of my pills and told him to give them a try. he called me the other day and told me it was great he slept like a baby and asked his doctor to give him a prescription.
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I have been having a very difficult time with Restless leg when trying to sleep. I tried a number of different proven treatments but have found a solution that has been a lifesaver for me. I take five mg of generic Pramipexole 1hr before bed.
“Pramipexole is used to treat Parkinson disease. It may be used alone or in combination with other medicines (eg, levodopa). Pramipexole is a dopamine agonist that works on the nervous system to help treat the symptoms of Parkinson disease. Pramipexole is also used to treat Restless Legs Syndrome (RLS).”
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Strick “Keto” saved me. With FA, been in chair 20+ years.
Jon
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I live in the state medical marijuana is illegal and the ridiculous lawmakers believe that you are committing some sort of crime. I can purchase things on the dark web, but is expensive and I can’t afford it.
I would like to move to a better state, but can’t afford relocation. doctors prescribe medications with nasty side effects and think that’s the best way to go. A neurologist want to put a pump on my spinal cord that releases a muscle relaxer. I asked him what about using marijuana and his reply was “all that does is relax you”. Isn’t that the goal.
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I would like to know if you have experimented would dosage levels and type or brand of CBD oil. I have the same problems and what type of smoke would help
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Also vet, Vietnam, I also experienced arm muscle pain, but improving 3 weeks on.