Forum Replies Created

  • Catherine Vasquez Ortiz

    Member
    May 22, 2019 at 12:58 pm in reply to: Siblings

    Good Afternoon Everyone! The topic on Siblings. I have two older brothers with FA I as well have it. What I don’t understand is that we three have FA but they don’t have a C Shape Spine as I do. Can siblings have the same thing but with different symptoms?

  • Catherine Vasquez Ortiz

    Member
    May 5, 2019 at 5:39 pm in reply to: Relationships with doctors

    I’ve already share my experience with doctors. Now I just found out the doctor I have seen at USF is leaving? Now what am I going to do?

  • Catherine Vasquez Ortiz

    Member
    May 5, 2019 at 8:16 am in reply to: Advice or encouragement

    Good Morning Everyone! Frankie is there any way you can call me, I really need your Advice on something,
    813-493-5268
    Catherine

  • Frankie and Matt hello I’m not sure how to reply to a message but all the doctor’s that I have called First are already judging me from the way I speak. I have been looking for a Primary Care just to see me and try and get referrals to see other doctors. I have a Case Manager through Humana and she also has been helping me. We called USF this morning and they don’t have a Primary Care who takes my insurance. Then called another place that had already set me up with a an appointment and when we called to Verify the appointment they only take Humana Military. I have a Primary Care now that I have been wanting to change due to the fact that she is Not Compassionate at all. I have been requesting a Scooter Chair for in my home and have been waiting for a month. I’m covered at 100% but this doctor has Not done a thing about it. I try not to call a lot because I don’t want to be a PITA! Or get them Upset. I’ve asked for referrals for a Cardiologist and they basically said Yeah will work on it and get back to you. Still Nothing 😔 It’s making me feel so depressed. I’m here trying to Stay Safe and these people seem to not care. I don’t know What Else to do. I need help and No One Seems to Care. I’m not asking them for Anything but a Scooter. My Symtoms are getting worse Everyday and I can’t focus on that. I need to stay positive but how can I with everything that’s going on. Who do I turn to? If Anyone has ANY information Please direct me! I’m in Tampa Florida. Thank you!

  • Frankie thank you for replying. I’ve been to USF and seen Dr. Z the problem is I need a referral to see her and No Primary care doctor will take me as a patient. I have Humana and I have tried and tried to a doctor and none of them are educated on this. It’s so frustrating 😫 Can you see if you can find out something for me? Thanks

  • Jamie I read your post and I really myself can’t Answer that. It’s Anyone’s Right to Choose. But that’s how people think. Myself I need to stay Strong 💪 and focus on my safety. I have no caregiver No Doctors I really don’t know what to do with what’s going on

  • I’m sorry everything came out double. I can really spell. LoL

  • Hello I’m 49 years old aand I have FA it came Llate Onset. Now my ssymtoms are getting wworse Everyday. And tthe worse part is No DDoctor here will see mMe. I’m in Tampa FFlorida. Do you have aany Suggestion on this. I know that I am rresponding to the wrong topic but I’m new and don’t know how tto start one.

  • Catherine Vasquez Ortiz

    Member
    April 10, 2019 at 8:01 pm in reply to: Water intake and bladder control

    I’m kinda scared about taking my B Complex I find myself having to go all day. I do take other vitamins. Does anyone have the same thing with B Complex?

  • Catherine Vasquez Ortiz

    Member
    April 10, 2019 at 7:57 pm in reply to: Water intake and bladder control

    I thought something was going on now you have opened my eyes to see that other people have the same issue.

  • Catherine Vasquez Ortiz

    Member
    April 10, 2019 at 7:10 pm in reply to: Advice or encouragement

    I’m looking for the same thing but I am 49 years old and I have FA. I didn’t start noticing it until age 339. Just looking for a friend to help me cope with this. I was such a Strong Person and Now I feel so Weak

  • Catherine Vasquez Ortiz

    Member
    April 10, 2019 at 6:58 pm in reply to: Showers and the equiptment needed

    I have chairs that are attached to my shower. I place a small towel so I don’t slip. I have a question? Why is it my symtoms are getting worse Everyday. I have been in a wheelchair for 4 years and been able to move my legs and now it seems like my legs are giving out. Has Anyone had this progressing FA like I do and if so what can I do to get my strength back? I’m really scared about this and need someone to talk to about this? Can someone please call me. 813-493-5268?