Friedreich’s Ataxia News Forums Forums Living With FA Understanding different levels of progression

  • Understanding different levels of progression

    Posted by frankie-p on March 25, 2019 at 2:35 pm

    When it comes to having FA, there are different stages and levels of progressing. As someone who is still mobile, I often get reminded that I will no longer have the ability to do what I am doing now from those who are more progressed. I think that this comes from people not fully understanding the nature of the disease in general or anger/sadness seeing someone have use of their legs while having the same disease. Also, there are those who genuinely just want to offer advice. WHICH IS TOTALLY UNDERSTANDABLE. It must be really hard to process and accept. I get a taste of it whenever I’m out in public myself and I see others running for exercise by the coast or something small like seeing someone carry coffees to their group of friends without a second thought.

    Does  anyone else experience this frequently?

    frankie-p replied 4 years, 11 months ago 1 Member · 0 Replies
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