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    • #11342

      Do you have a blog? Youtube channel? Instagram or Facebook page dedicated to life with Friedreichs ataxia? Include your links to or social media handles down below and tell us WHY we should follow you?

    • #11356
      Matt Lafleur
      Keymaster

      @madelynfrederick1 and @curefa-now , it’s your time to shine!

    • #11357
      Madelyn Frederick
      Participant

      One of the first things I did after being diagnosed was go to YouTube and search for Friedrich’s Ataxia. After being very disappointed and discouraged by the results I went into a phase of denial. I did not want to hear, see, or speak about my illness. After 4 years of living life feeling as if I was alone and isolated I decided to start my own YouTube channel about life with FA. My only goal was to help others navigate the treacherous waters that tag along with FA and show people they aren’t alone. Now that I have been growing my channel or almost a year now (that’s crazy) not only am I receiving messages daily from other saying I’ve encouraged them or given them hope, I have also seen myself grow in many ways as well!

      My goal will always be to spread hope!
      Go checkout my channel and subscribe! YouTube.com/madelynfrederick

      • #11358
        Matt Lafleur
        Keymaster

        Really proud of you and what you’re doing. EVERYONE SIGN UP!

    • #11359
      Jakob Mitterhauser
      Participant

      Facebook: Healing FA https://www.facebook.com/JakobMitterhauserBlog/?ref=bookmarks
      Instagram: healing_fa

      I write about my holistic health approach and how i was able to slow my progression with it 🙂

      • This reply was modified 1 year, 2 months ago by Matt Lafleur.
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