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    • #15620

      When it comes to managing FA and tracking progression, seeing your neurologist is best so you can have the correct knowledge of FA.

      Personally, I see a neurologist about three times a year. How about you? How often do you see it neurologist? If you don’t, do you need help locating one?

    • #15634
      Jane Briscoe
      Participant

      Have not seen my neurologist for over two years. He is a lovely person and recently made an associate professor at Auckland’s teaching hospital. I am enrolled in the public health system in NZ, all specialist treatments are free, so I know my neurologist is busy. (Plus I am 68 and have FA to a mild degree so have tried to be patient waiting for my next appointment). Thanks Frankie, you have given me the impetus to ring the neuro dept and get assertive!

    • #15635
      Jane Briscoe
      Participant

      Have not seen my neurologist for over two years. He is a lovely person and recently made an associate professor at Auckland’s teaching hospital. I am enrolled in the public health system in NZ, all specialist treatments are free, so I know my neurologist is busy. (Plus I am 68 and have FA to a mild degree so have tried to be patient waiting for my next appointment). Thanks Frankie, you have given me the impetus to ring the neuro dept and get assertive!

    • #15638

      @janebriscoe that’s so great to hear! Hope all is well!

    • #15639

      @janebriscoe that’s so great to hear! Hope all is well!

    • #15641

      I go once year to CHOP in Philly to see Dr. Lynch. In addition, I see the cardiologist every other year.

      I was told only once a year is fine. Do you think it should be more @frankie-perazzola? What do you go over at each visit?

    • #15667

      That’s the normal amount. I go so often because of clinical trials, thats all.

    • #15679
      Katherine
      Participant

      My neurologist wants me to see her once a year, but… why, though? What am I supposed to be getting out of those visits?

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