Friedreich’s Ataxia News Forums Forums Living With FA How often do you see your neurologist?

  • How often do you see your neurologist?

    Posted by frankie-p on January 10, 2020 at 5:56 pm

    When it comes to managing FA and tracking progression, seeing your neurologist is best so you can have the correct knowledge of FA.

    Personally, I see a neurologist about three times a year. How about you? How often do you see it neurologist? If you don’t, do you need help locating one?

    friendlyneighborhoodataxian replied 4 years, 3 months ago 4 Members · 6 Replies
  • 6 Replies
  • jane-briscoe

    Member
    January 14, 2020 at 3:05 pm

    Have not seen my neurologist for over two years. He is a lovely person and recently made an associate professor at Auckland’s teaching hospital. I am enrolled in the public health system in NZ, all specialist treatments are free, so I know my neurologist is busy. (Plus I am 68 and have FA to a mild degree so have tried to be patient waiting for my next appointment). Thanks Frankie, you have given me the impetus to ring the neuro dept and get assertive!

  • jane-briscoe

    Member
    January 14, 2020 at 3:05 pm

    Have not seen my neurologist for over two years. He is a lovely person and recently made an associate professor at Auckland’s teaching hospital. I am enrolled in the public health system in NZ, all specialist treatments are free, so I know my neurologist is busy. (Plus I am 68 and have FA to a mild degree so have tried to be patient waiting for my next appointment). Thanks Frankie, you have given me the impetus to ring the neuro dept and get assertive!

  • frankie-p

    Member
    January 14, 2020 at 9:58 pm

    @janebriscoe that’s so great to hear! Hope all is well!

  • frankie-p

    Member
    January 14, 2020 at 9:58 pm

    @janebriscoe that’s so great to hear! Hope all is well!

  • christina-cordaro

    Member
    January 14, 2020 at 10:12 pm

    I go once year to CHOP in Philly to see Dr. Lynch. In addition, I see the cardiologist every other year.

    I was told only once a year is fine. Do you think it should be more @frankie-perazzola? What do you go over at each visit?

  • frankie-p

    Member
    January 16, 2020 at 2:59 pm

    That’s the normal amount. I go so often because of clinical trials, thats all.

  • friendlyneighborhoodataxian

    Member
    January 19, 2020 at 3:30 pm

    My neurologist wants me to see her once a year, but… why, though? What am I supposed to be getting out of those visits?

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