• Tina-D

    July 30, 2023 at 1:50 pm

    Are you still taking Idebenone?

  • Terence O'Hanlon

    August 2, 2023 at 12:57 am

    Idebenone is very expensive and can’t be easily sourced from Australia (If it’s a drug it would need clearance to import. It’s not approved by the TGA (our FDA) so better not to ask that question!)

    It hasn’t been proven out despite a number of clinical trials.

    So in 2017 (after about seven years of taking Idebenone) I switched back to CoQ10. 300mg x 2 x day. My cardiologist said “Wow that’s a lot but if you’re not noticing any side effects then ok I guess.”

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