@terence
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Terence O'Hanlon replied to the topic How many of you use more than one assistive device? in the forum Assistive Device Usage 2 months, 1 week ago
Depending on how you categorise them, it could be said that I use countless assistive devices!
I use a wheelchair in the house, a motorised scooter when out on my own, a manual wheelchair with lever drives when out with someone. I have a recumbent trike for self-powered exercise.
Inside my home I have lots of grabrails to help with transfers.…[Read more]
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Terence O'Hanlon replied to the topic Another Diagnosis Option in the forum Living with FA 10 months ago
Whoever said your parents “don’t have” the gene that causes FA isn’t quite right. Everyone has it. In FAers it’s faulty but it’s there. In non-FAers it functions properly… and it’s there.
Check with a neurologist or a genetic counsellor. Make sure you understand what they tell you, even if that means asking them to explain it over and over in…[Read more] -
Terence O'Hanlon became a registered member 10 months ago
Welcome, Terence! We look forward to hearing from you on the forums 🙂
Hi Terence,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of ou…[Read more]