• Depending on how you categorise them, it could be said that I use countless assistive devices!

    I use a wheelchair in the house, a motorised scooter when out on my own, a manual wheelchair with lever drives when out with someone. I have a recumbent trike for self-powered exercise.

    Inside my home I have lots of grabrails to help with transfers.…[Read more]

  • Whoever said your parents “don’t have” the gene that causes FA isn’t quite right. Everyone has it. In FAers it’s faulty but it’s there. In non-FAers it functions properly… and it’s there.
    Check with a neurologist or a genetic counsellor. Make sure you understand what they tell you, even if that means asking them to explain it over and over in…[Read more]

  • Terence O'Hanlon became a registered member 10 months ago

    • Welcome, Terence! We look forward to hearing from you on the forums 🙂

    • Hi Terence,
      Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of ou…[Read more]

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