• sheryl

    Member
    March 12, 2021 at 12:57 am

    My best friend at the time, dropped me like I was a bag of garbage. Hurts like hell, but it needs out those who aren’t genuinely there for you & shows you who is. My circle is very small now. I don’t let people in so easily anymore.

  • karina-jeronimides

    Member
    March 16, 2021 at 6:23 pm

    My older sister was my best friend. When my ataxia reared its ugly head, she mistook it for an attempt to take the center stage. As a middle child, one is often ignored. Anyways, she was mean to me, and a huge gulf still exists between us. She doesn’t get it, has put me down so much out of complete ignorance, and is too busy to see me more than 4 times a year even though we live 10 minutes away. Then my younger brother had similar symptoms, that quadrupled in time in comparison to mine, and my father was horrible with him. So I was never the center. My family moved around so much, we lost touch with almost every friend we had while growing up. Like my brother, I do not have a best friend. It’s incredibly difficult to make time for others when one is running so much to make up for one’s FA, and when normal people are so incredibly busy. When one has FA, you just have to be so incredibly selfish with one’s time. There is also the problem of knowing you ares a burden, and believing that others would just not be interested. But my daughters and my students are beginning to surprise me.

  • Tina-D

    Member
    October 24, 2022 at 1:10 pm

    After over 25 years of friendship my closest friend and her husband decided not to invite me to her birthday party. I found out about it after I saw photos on social media. They say it’s because I don’t drink or dance. I think it isĀ  because I am in a wheelchair. Over the years we have been to wine-tasting parties, pool parties, Oktoberfest parties… They are not upset but will not talk to me. I think they should have invited me, I would have gone just to get out. What else should I do or should I wait for them to reach out?

    • katie-griffith

      Member
      October 27, 2022 at 1:56 pm

      Thatā€™s so hard, Christina! If they know that it hurt your feelings, Iā€™m not sure what else you can do. Iā€™m so sorry!

    • christina-cordaro

      Member
      November 1, 2022 at 8:10 am

      I am so sorry, Christina! I know how it feelstp be left out or feel “unseen”.

      I would definitely let them know how you feel and say what could be done better for the future.

  • Tina-D

    Member
    November 1, 2022 at 8:47 am

    I did reach out. The Husband apologized to my husband but not to me. Knowing him, that’s all I’ll get.

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