Having FA can be extremely lonely at times. Especially when you don’t know anyone in the FA community. Personally, attending events has completely changed my life and acceptance of being sick.
I’m writing to you from the FA symposium here in Philadelphia. This is a trip I make almost every year and one of my favorite weekends all year too. It includes rideATAXIA Philly on Sunday and the symposium on Monday.
There is a level of comfort and acceptance that you won’t experience anywhere else but an FA event. It feels amazing to be in the presence of others who know EXACTLY what you are going through.
Are you interested in attending an FA event near you? If not, what are some of your hesitations?
Friedreich’s Ataxia News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.