Friedreich’s Ataxia News Forums Forums Living With FA Attending an FA event

  • Attending an FA event

    Posted by frankie-p on October 14, 2019 at 8:58 am

    Having FA can be extremely lonely at times. Especially when you don’t know anyone in the FA community. Personally, attending events has completely changed my life and acceptance of being sick.

    I’m writing to you from the FA symposium here in Philadelphia. This is a trip I make almost every year and one of my favorite weekends all year too. It includes rideATAXIA Philly on Sunday and the symposium on Monday.

    There is a level of comfort and acceptance that you won’t experience anywhere else but an FA event. It feels amazing to be in the presence of others who know EXACTLY what you are going through.

    Are you interested in attending an FA event near you? If not, what are some of your hesitations?

    christina-cordaro replied 4 years, 6 months ago 3 Members · 2 Replies
  • 2 Replies
  • Deleted User

    Deleted User
    October 14, 2019 at 11:58 am

    Hell yes I would love to attend an FA event near me!

  • christina-cordaro

    October 14, 2019 at 2:07 pm

    @frankie-perazzola I’m so glad we officially got to meet in person today!

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