I know that birthdays can be tough for some patients living with Friedreich’s ataxia. It can be a reminder of how much this disease keeps taking from us each year. I completely understand. It is hard not to get down on the things we still can or can’t do. However,…
A Practical Guide to Life with FA - a Column by Christina Cordaro
My name is Christina Logan, and doctors diagnosed me with the rare neuromuscular disorder Friedreich’s ataxia at the age of 21. I grew up in Holland, Pennsylvania, with my dad, mom, sister (Catherine), and brother (Matthew). I was very active in the music community and participated in choir, the marching…
Recent Posts
- Friedreich’s ataxia places heavy daily burden on patients, caregivers: Study
- Living with FA has taught me the difference between pain and suffering
- While living with FA, we get used to dealing with setbacks
- DT-216P2 shows early signs of benefit in Friedreich’s ataxia clinical trial
- I am taking a lesson from the Stoics and learning to let go of unrealistic goals