‘We’re All in This Together’
Welcome, friends! I hope you are staying cool and spending some quality time with those you love. I am so thankful for you and the part you play in this community. It’s July and super hot here in Alabama,…
Hope from Home — Katie Griffith
Katie, who lives in Alabama, is a wife and mother of three. Life changed suddenly in 2018 when her oldest son, Noah, was diagnosed with FA just months after she and her husband adopted their youngest child from foster care. Previously a nurse, Katie now spends her days meeting the needs of her children and advocating for their well-being. Some of her favorite things are the enneagram, deal finding, and long baths at the end of tough days. Katie’s goal is to offer glimpses of hope in the midst of daily life as a caregiver.
Featured Post
Goodbyes Are Never Easy, but They Are Part of Life
It’s the time of year when we begin to catch little glimpses of changes coming — a breeze blowing unexpectedly, cool morning air, leaves starting to fall. I’ve learned after my 43 years on this earth that seasons change.
Read more
Even When My Intentions Are Good, Sometimes I Still Get It Wrong
Welcome! Pull up a chair and pour yourself a glass of something nice and refreshing. You deserve some time to rest and reflect on what you need today. As a caregiver to a son with Friedreich’s ataxia (FA), my…
Finding Ways to Celebrate, Even When Life Is Challenging
Hello, friends, old and new! Spring is coming to a close, and the days are getting longer and hotter down here in Alabama. I hope that you have some time today to reflect and be proud of how far…
I’ve Learned to Speak Kindly to Myself When Shame Sneaks In
Hello, friends! I hope you are enjoying some fresh spring air and the sun is shining down on you. Even if it’s dark and rainy, you are worthy of all the beautiful things, and I am so happy to…
As Parents and Caregivers, We Can Find Beauty in Life With FA
Welcome back! I wish we could have this conversation face-to-face over a cup of coffee. For now, we’ll have to settle for this virtual space, where we can connect in a different, but hopefully meaningful, way. As you’ve probably…
In the Darkest Moments, I Find Glimmers of Hope
Hello, I am so glad you are here! Take off your shoes, prop up your feet, and take a deep breath. You are welcome just as you are. Some days are permanently etched into our minds. One that will…
Your FA Community
Visit the Friedreich’s Ataxia News forums to connect with others in the FA community.
